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    What is Moebius syndrome?

    Moebius syndrome is a nonprogressive craniofacial/neurological disorder. Individuals with Moebius syndrome cannot smile or frown, and do not have lateral eye movements. Learn more here and read about treatments.
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    Get involved

    There are many ways to get involved with the Moebius community. Volunteer, attend the conference, write for our bi-annual newsletter, host an event for Moebius Syndrome Awareness Day…find out how you can get involved!
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    Our stories

    We are college students and professors; students who excel in academia and teachers. We play sports, perform in bands, dance, and act. Across all ages, those living with Moebius lead fulfilling, productive lives. Read our stories »
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    Our conference

    Join us for the 12th Moebius Syndrome Foundation Conference on July 15 – 17, 2016 in Los Angeles, California. Come learn about treatments, the latest research and network with others in the Moebius community. You don’t want to miss it! View »
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The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

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FRAME video on Moebius syndrome

The Moebius Syndrome Foundation is excited to announce the premiere of the FRAME video, produced by Rick Guidotti and his non-profit organization, Positive Exposure!

FRAME is a web-based educational library and resource created by Positive Exposure that changes how medical information is presented to health care professionals in training, clinicians, families and communities. Additionally, FRAME can be utilized by families, therapists, educators, communities as well as a tool for transition medicine as an increasing number of young adults living with genetic conditions now enter into the adult health care system. View the video here:

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Become a Champion

Posted by Kim Cunningham
A few weeks back I was speaking with someone and they mentioned that members of the Moebius community want to raise awareness of the condition and that some have done a really good job of working with their local schools, government representatives and media. My background is in public relations/communications but also in advocacy, so my ears perked up. After a ...READ MORE »