• Moebius Syndrome Foundation Conference

    Save the Date for the 13th Moebius Syndrome Foundation Conference! July 20-22, 2018 in St. Petersburg, Florida. See you there!
  • What is Moebius syndrome?

    Moebius syndrome is a nonprogressive craniofacial/neurological disorder. Individuals with Moebius syndrome cannot smile or frown, and do not have lateral eye movements. Learn more here and read about treatments.
  • Our stories

    We are college students and professors; students who excel in academia and teachers. We play sports, perform in bands, dance, and act. Across all ages, those living with Moebius lead fulfilling, productive lives. Read our stories »
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The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

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Foundation Welcomes New Board Members

Posted by Kim Cunningham
The Moebius Syndrome Foundation is pleased to announce that four new members have been added to the Board of Directors:   Bryn Webb, MD, New York City        Dr. Webb is Board Certified in Clinical Genetics and Pediatrics and is Assistant Professor in the Department of Genetics and Genomic Science & Pediatrics at the Ichan School of Medicine at Mt. Sinai Hospital in New York City.  She is also the Co-Director of the Cleft & Craniofacial Clinic at Mt. Sinai Hospital, and is ...READ MORE »

Download Your Moebius Information Card!

Posted by Kim Cunningham
An adult within our community brought this fantastic suggestion forward – thank you! They wanted a simple card to carry with them that explains Moebius syndrome. It is business-card size, so it will easily fit in your wallet. Easy to give to a doctor, a teacher or a friend. The Moebius Syndrome Foundation website is on the card so people can get more information. This Moebius syndrome informational card is now available to download here (just right click and save as) ...READ MORE »

Tell the NIH Your Views

Posted by Kim Cunningham
Living with Facial Weakness?  The NIH wants to hear from you. The research team aims to learn people’s views on how facial weakness affects or does not affect their everyday lives. The data will be used to understand the experiences of adults and adolescents from their own perspective. The survey takes approximately 20 minutes to complete; please take your time and answer each question honestly. Some items are quite similar, but they assess distinct preferences and are important because they give ...READ MORE »