• Mighty Moebius T-Shirts Now Available!

    Share your Mighty Moebius pride! Shop here! All proceeds support the Moebius syndrome community through conferences, conference scholarships, educational scholarships, research and information-sharing. #MightyMoebius
  • Fall Newsletter Now Available!

    The latest issue of Moebius Syndrome Foundation News is now available. Read more about the 2018 MSF Conference and all of our research initiatives! Read it here.
  • Moebius Syndrome Foundation Conference

    Save the Date for the 13th Moebius Syndrome Foundation Conference! July 20-22, 2018 in St. Petersburg, Florida. See you there!
  • What is Moebius syndrome?

    Moebius syndrome is a nonprogressive craniofacial/neurological disorder. Individuals with Moebius syndrome cannot smile or frown, and do not have lateral eye movements. Learn more here and read about treatments.
  • Our stories

    We are college students and professors; students who excel in academia and teachers. We play sports, perform in bands, dance, and act. Across all ages, those living with Moebius lead fulfilling, productive lives. Read our stories »
  • 1
  • 2
  • 3
  • 4
  • 5

OUR MISSION

The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

Facebook Twitter Vimeo LinkedIn Instagram

Download Your Moebius Information Card!

Posted by Kim Cunningham
An adult within our community brought this fantastic suggestion forward – thank you! They wanted a simple card to carry with them that explains Moebius syndrome. It is business-card size, so it will easily fit in your wallet. Easy to give to a doctor, a teacher or a friend. The Moebius Syndrome Foundation website is on the card so people can get more information. This Moebius syndrome informational card is now available to download here (just right click and save as) ...READ MORE »

Moebius Syndrome Foundation Issues Call for Nominations for Board of Director Positions

Posted by Kim Cunningham
The Moebius Syndrome Foundation is pleased to announce the call for nominations for its Board of Directors.   The Moebius Syndrome Foundation has seen tremendous growth in recent years. Since its beginning in 1994, the Foundation has grown from a handful of individuals and families living with Moebius syndrome to more than 3,000 worldwide. The foundation hosts conferences every two years and provides extensive support and resources for the Moebius community. It is our hope that families and individuals find the support they need. ...READ MORE »

Tell the NIH Your Views

Posted by Kim Cunningham
Living with Facial Weakness?  The NIH wants to hear from you. The research team aims to learn people’s views on how facial weakness affects or does not affect their everyday lives. The data will be used to understand the experiences of adults and adolescents from their own perspective. The survey takes approximately 20 minutes to complete; please take your time and answer each question honestly. Some items are quite similar, but they assess distinct preferences and are important because they give ...READ MORE »