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The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

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Tell the NIH Your Views

Posted by Kim Cunningham
Living with Facial Weakness?  The NIH wants to hear from you. The research team aims to learn people’s views on how facial weakness affects or does not affect their everyday lives. The data will be used to understand the experiences of adults and adolescents from their own perspective. The survey takes approximately 20 minutes to complete; please take your time and answer each question honestly. Some items are quite similar, but they assess distinct preferences and are important because they give ...READ MORE »

2017 Moebius Syndrome Foundation Educational Scholarships Awarded

Posted by Kim Cunningham
The Moebius Syndrome Foundation has awarded three young people with the Post-Secondary Educational Scholarships. We are pleased to announce that those awarded with $2,000 scholarships toward their college tuition are Brianna Kelley, Mike Gonzalez and Dominque Piotrowski. Congratulations!!   Brianna Kelley of Lawrenceville, GA, will attend the University of Iowa where she will pursue her doctorate in Communication Sciences and Disorders. Brianna is a member of Phi Kappa Phi, Golden Key International Honor Society, Sigma Alpha Lambda, and Phi Theta Kappa. She ...READ MORE »

Inaugural Webinar Scheduled: March 2, 2017

Posted by Kim Cunningham
Join the Moebius Syndrome Foundation for its inaugural Webinar presentation. We’re Talkin’ Moebius! For the first presentation, we are honored to host Dr. Rhonda Robert, P.h.D., Chief of Behavioral Pediatrics and professor of clinical psychology at The Children’s Cancer Hospital, University of Texas MD Anderson Cancer Center. She will be discussing Psychological Well-Being and Moebius Syndrome. You must register in advance for the Moebius Syndrome Foundation Webinar Presentation on Thursday, March 2, 2017, 8 pm EST. There are limited spots! Register ...READ MORE »