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The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

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The Foundation is Hiring!

Posted by Kim Cunningham
The Moebius Syndrome Foundation is excited to announce the opening for an Events & Program Manager. Below is the job description. Please no phone calls. If you have questions, email us. Events & Program Manager Deadline to Apply: October 30, 2017 The Events & Program Manager will handle the projects and events of the organization to ensure that they are in line with the mission of the Moebius Syndrome Foundation. The main responsibility for this role is to manage the logistics for the Moebius ...READ MORE »

Moebius Syndrome Foundation Issues Call for Nominations for Board of Director Positions

Posted by Kim Cunningham
The Moebius Syndrome Foundation is pleased to announce the call for nominations for its Board of Directors.   The Moebius Syndrome Foundation has seen tremendous growth in recent years. Since its beginning in 1994, the Foundation has grown from a handful of individuals and families living with Moebius syndrome to more than 3,000 worldwide. The foundation hosts conferences every two years and provides extensive support and resources for the Moebius community. It is our hope that families and individuals find the support they need. ...READ MORE »

Tell the NIH Your Views

Posted by Kim Cunningham
Living with Facial Weakness?  The NIH wants to hear from you. The research team aims to learn people’s views on how facial weakness affects or does not affect their everyday lives. The data will be used to understand the experiences of adults and adolescents from their own perspective. The survey takes approximately 20 minutes to complete; please take your time and answer each question honestly. Some items are quite similar, but they assess distinct preferences and are important because they give ...READ MORE »