• Educational Scholarships Awarded!

    We are excited to announce that the Moebius Syndrome Foundation has awarded four young people with Post-Secondary Educational Scholarships! Read more.
  • Moebius Syndrome Foundation Conference

    Save the Date for the 13th Moebius Syndrome Foundation Conference! July 20-22, 2018 in St. Petersburg, Florida. Registration will remain open until July 13, 2018!
  • What is Moebius syndrome?

    Moebius syndrome is a nonprogressive craniofacial/neurological disorder. Individuals with Moebius syndrome cannot smile or frown, and do not have lateral eye movements. Learn more here and read about treatments.
  • Get involved

    There are many ways to get involved with the Moebius community. Volunteer, attend the conference, write for our bi-annual newsletter, host an event for Moebius Syndrome Awareness Day…find out how you can get involved!
  • Our stories

    We are college students and professors; students who excel in academia and teachers. We play sports, perform in bands, dance, and act. Across all ages, those living with Moebius lead fulfilling, productive lives. Read our stories »
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The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

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Moebius Syndrome Foundation Thanks Kim Cunningham

Posted by Kim Cunningham
Dear Moebius Community, Kim Cunningham, the Moebius Syndrome Foundation’s Executive Director will be resigning from the role as of June 2018. For the past three years with the Moebius Syndrome Foundation Kim has overseen significant growth and has worked across the Moebius community. With Kim’s help, the Foundation has redesigned the Website; grown our social media presence; invested more in research; created educational scholarships; hired staff members to grow our programming; conducted a Strategic Planning exercise with the Board; increased the number ...READ MORE »

Roshambo Sundraiser!

Posted by Kim Cunningham
We’re teaming up with ro•sham•bo baby sunglasses to help raise money for the Moebius Syndrome Foundation! Get 10% off your order with code: Moebius and ro•sham•bo baby will give 10% of your sale back to the Moebius Syndrome Foundation. Why should you buy these shades (besides from the fast that they are ridiculously adorable)? ro•sham•bo baby makes unbreakable sunglasses for babies, kids & adults. These Italian made shades offer 100% UVA/B/C protection with polarized lens options in all sizes! They even have ...READ MORE »

Foundation Welcomes New Board Members

Posted by Kim Cunningham
The Moebius Syndrome Foundation is pleased to announce that four new members have been added to the Board of Directors:   Bryn Webb, MD, New York City        Dr. Webb is Board Certified in Clinical Genetics and Pediatrics and is Assistant Professor in the Department of Genetics and Genomic Science & Pediatrics at the Ichan School of Medicine at Mt. Sinai Hospital in New York City.  She is also the Co-Director of the Cleft & Craniofacial Clinic at Mt. Sinai Hospital, and is ...READ MORE »