The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.
Healthcare professionals, researchers and those who want more information on Moebius, click here »
For Adults and Young Adults
Interested in getting involved or connecting with others living with Moebius?
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For Friends and Relatives
Learn about Moebius syndrome and ways you can support your loved one.
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The Moebius Syndrome Foundation is excited to announce the premiere of the FRAME video, produced by Rick Guidotti and his non-profit organization, Positive Exposure!
FRAME is a web-based educational library and resource created by Positive Exposure that changes how medical information is presented to health care professionals in training, clinicians, families and communities. Additionally, FRAME can be utilized by families, therapists, educators, communities as well as a tool for transition medicine as an increasing number of young adults living with genetic conditions now enter into the adult health care system. View the video here: