You may want to search Facebook for other groups. We have partner organizations across the globe you may want to connect with.
Grandparents Online Support Group on Yahoo — contact firstname.lastname@example.org
RareConnect — The Moebius Syndrome Community on RareConnect is a collaboration between international Moebius syndrome foundations and support groups by NORD and EURORDIS www.rareconnect.org/en/community/moebius-syndrome
Kinsights — www.kinsights.com/for/moebius-syndrome