The Moebius Syndrome Foundation is unable to provide financial support for individuals living with Moebius syndrome. However, you can apply for a Moebius Syndrome Foundation Conference Scholarship:
For first time attendees with financial need (adult with Moebius syndrome or parent/caretaker of a child with Moebius syndrome). A limited number of scholarships to help pay for registration and/or hotel or travel are offered for each conference. They are granted in the order received (by mail) so it is important to register early once conference registration opens. Check the upcoming conference page and brochure for details.
There are some organizations that may be able to provide financial assistance:
Kaela Anderson Memorial Foundation Scholarship
Since 2001, the Kaela Anderson Memorial Foundation has been offering the Moebius Syndrome Scholarship Award to students who are U.S. citizens and have been diagnosed with Moebius syndrome.
There are millions of Americans living in poverty and/or living in rural or small town areas who lack the financial means to travel to distant medical specialists for essential care and treatment. This is the reason an MMA-sponsored charitable medical transportation system exists in the United States.
Miracle Flights for Kids provides financial assistance for medical travel in the form of commercial airline tickets enabling children and adults to reach the out-of-state medical expertise they desperately need. Check with Miracle Flights for eligibility and more information.
State Funding Assistance for Conferences
You may qualify for state funding to subsidize Moebius Syndrome Conference expenses. Most states have funds available for families attending educational meetings or conferences through the state department of developmental disabilities (names vary). Check with the agencies in your state to see if you qualify. (Thank you to Children’s Craniofacial Association for the listing!)