• Ft. Worth Moebius Mini-Conference

    Join us on November 1-3, 2019 for Ft. Worth Mini-Conference! Adult Meet-ups, Educational Sessions, Lots of Networking, and Family Friendly Activities in what is known as “Cow Town.” If you’ve been thinking about visiting Texas, this is the …
  • Moebius Syndrome Foundation Mini-Conference in Portland, Oregon

    Mark your calendars! Join us on April 5-7 for our first Moebius Syndrome Foundation Mini-Conference! Adult Meet-ups, Educational Sessions, Lots of Networking and Sharing, Family Friendly Activities.
  • Fall Newsletter 2018

    Our 2018 Fall Newsletter is now available. Included is our new Board of Directors, a wrap up of our conference, and a list of our generous donors. Read the newsletter here »
  • Moebius Syndrome Foundation Conference

    A huge thank you to all who attended our 2018 event! View photos, slideshow and presentations from the 13th Moebius Syndrome Foundation Conference here »
  • What is Moebius syndrome?

    Moebius syndrome is a nonprogressive craniofacial/neurological disorder. Individuals with Moebius syndrome cannot smile or frown, and do not have lateral eye movements. Learn more here and read about treatments.
  • Get involved

    There are many ways to get involved with the Moebius community. Volunteer, attend the conference, write for our bi-annual newsletter, host an event for Moebius Syndrome Awareness Day…find out how you can get involved!
  • Our stories

    We are college students and professors; students who excel in academia and teachers. We play sports, perform in bands, dance, and act. Across all ages, those living with Moebius lead fulfilling, productive lives. Read our stories »
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The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

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Moebius Syndrome Foundation Selects New Executive Director

Posted by Natalie Abbott
The Moebius Syndrome Foundation, the nation’s largest organization dedicated to the support of individuals and families with Moebius syndrome, is proud to announce Dina Scalone as its new Executive Director, effective July 1, 2018. Scalone has spent the majority of her career working in the nonprofit sector, most recently with Easterseals Blake Foundation in Tucson, Arizona, as their Chief Philanthropy Officer.  EBF is the largest nonprofit organization in southern Arizona, with an annual budget of more than $45 million. Nationally, Easterseals is the ...READ MORE »

Foundation Welcomes New Board Members

Posted by Moebius Foundation
The Moebius Syndrome Foundation is pleased to announce that four new members have been added to the Board of Directors:   Bryn Webb, MD, New York City        Dr. Webb is Board Certified in Clinical Genetics and Pediatrics and is Assistant Professor in the Department of Genetics and Genomic Science & Pediatrics at the Ichan School of Medicine at Mt. Sinai Hospital in New York City.  She is also the Co-Director of the Cleft & Craniofacial Clinic at Mt. Sinai Hospital, and is ...READ MORE »

Download Your Moebius Information Card!

Posted by Moebius Foundation
An adult within our community brought this fantastic suggestion forward – thank you! They wanted a simple card to carry with them that explains Moebius syndrome. It is business-card size, so it will easily fit in your wallet. Easy to give to a doctor, a teacher or a friend. The Moebius Syndrome Foundation website is on the card so people can get more information. This Moebius syndrome informational card is now available to download here (just right click and save as) ...READ MORE »