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OUR MISSION

The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

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Media urged to take care with language, tone and imagery when covering disfigurement

Posted by Moebius Foundation
Media Release Embargo 0001 Wednesday 5th February 2020 Media urged to take care with language, tone and imagery when covering disfigurement A new International Media Standard on Disfigurement has been launched today by Face Equality International, the global alliance representing people with facial disfigurements. Formed 12 months ago, Face Equality International’s first major priority as defined by its 33 NGO members was to produce internationally-applicable standards for the media and broadcasters. The new Standard is designed both to guide best practice in reporting on ...READ MORE »

Facial Paralysis Social-Emotional Survey Results

Posted by Moebius Foundation
The largest study of facial paralysis finds it is more stigmatized than other neurological conditions. This stigma leads to high levels of anxiety and depression, especially for people with acquired FP. Thank you Moebius Syndrome Foundation Scientific Advisory Board Member,     Kathleen Bogart, Ph.D.  for this important research. Check out the results here: https://liberalarts.oregonstate.edu/sites/liberalarts.oregonstate.edu/files/facial_paralysis_social-emotional_survey_results-200103_01.pdf

MOEBIUS SYNDROME AWARENESS DAY JANUARY 24 2020

Posted by Moebius Foundation
Press Release – Moebius Syndrome Awareness Day 2020 The Many Faces Of Moebius Syndrome (www.manyfacesofmoebiussyndrome.org), The Moebius Syndrome Foundation (www.moebiussyndrome.org) , The Moebius Syndrome Research Trust (www.moebiusresearchtrust.org), and The Children’s Craniofacial Association (www.ccakids.com) are proud to announce the 10th annual Moebius Syndrome Awareness Day which will be celebrated worldwide on Friday the 24th of January, 2020. Moebius Syndrome is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side to side. ...READ MORE »