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OUR MISSION

The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

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Board Director Applications Now Being Accepted

Posted by Jenny Whitman
The Moebius Syndrome Foundation (MSF) is excited to open a community-wide call for nominations to its Board of Directors! We seek Board members who share MSF’s commitment to serve as a collaborative center of education and support for families and individuals living with Moebius syndrome and its related conditions. We look for Board members with a commitment to work closely together with our executive director to help achieve our mission and who embody MSF’s values of professionalism, integrity, collaboration, and stewardship ...READ MORE »

New Executive Director Announced

Posted by Jenny Whitman
August 1, 2021- The Moebius Syndrome Foundation welcomes Jenny Whitman as its new Executive Director. Hired in January of 2018,  Jenny Whitman served in the role of Events and Programs Manager until August 1, 2o21 when she moved into the position of Executive Director. Her position is to help the Moebius Syndrome Foundation fulfill its vision and mission in providing support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate ...READ MORE »