• New Moebius Syndrome Foundation Store Launched

    Get all your official Moebius Syndrome Foundation gear at our new online store! Great options are available for spreading awareness, to wear at events, or for gift-giving! Shop all the new designs today.
  • A Guide for Educators

    The Moebius Syndrome Foundation is pleased to announce a newly published resource to help educators best support new students with Moebius syndrome. View or download for free. U.S. citizens can request up to 3 copies be mailed to them. Request your copies.
  • 2022 Educational Scholarship Recipients Announced

    Congratulations to the 2022 Moebius Syndrome Foundation Educational Scholarship recipients! Read more here.
  • Our Stories

    Check out some of the new stories posted by Moebius community members! Read more here.
  • GuideStar Platinum Seal Awarded

    The Moebius Syndrome Foundation has been awarded the Platinum seal of transparency from GuideStar, the leader in non-profit transparency!  Check out our updated profile here.
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The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

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Press Release: Moebius Syndrome Foundation Announces Awareness Campaign

Posted by Jenny Whitman
The Moebius Syndrome Foundation, American Cleft Palate Craniofacial Association, Children’s Craniofacial Association, Face Equality International, myFace, the Kindness is Everything team, and other organizations worldwide will be raising awareness and celebrating the people and families affected by Moebius syndrome and similar craniofacial conditions with a “Kindness is Everything” campaign from December through January 24, 2023. Read the full press release here.

2022 Moebius Syndrome Foundation Atlanta Conference Concludes

Posted by Jenny Whitman
The Moebius Syndrome Foundation hosted its 15th national conference and 8th Research Symposium on July 14-17, 2022, at the Atlanta Airport Marriott located in Atlanta, Georgia. The event attracted over 300 attendees worldwide, over 100 of whom have Moebius syndrome. The long weekend was packed with educational and entertaining breakout sessions, free research and medical consultation evaluations, a talent show and dance, outside excursions, and two keynote addresses presented by David Garcia, Ph.D., and Rick Guidotti with Positive Exposure. The Moebius Syndrome ...READ MORE »

Two New Research Participation Opportunities Available

Posted by Jenny Whitman
The Moebius Syndrome Foundation is currently conducting research into sleeping disorders, as well as a psychological study about the experiences of informing people about a facial difference. We invite the Moebius community to help make these studies successful by participating in online surveys for each topic. For more information, please review the following flyers: Facial Difference Survey and Sleep Health Study.