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The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

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Social Media Internship Now Available

Posted by Jenny Whitman
The Moebius Syndrome Foundation is looking to enter into a short-term Internship agreement with an entry level social media coordinator. This would be a great opportunity for a high school or college level student that is looking to gain more experience! Please read the description in the link, and contact us if you think you might be a good fit.

Moebius Syndrome Foundation Announces Conference Cancellation

Posted by Jenny Whitman
The Moebius Syndrome Foundation regretfully announces that its 14th national conference and scientific research symposium scheduled to be held in Minneapolis, Minnesota on July 22-25, 2021, is cancelled. Please read here for more information.