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OUR MISSION

The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

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Moebius Syndrome Foundation launches a new video!

Posted by Jenny Whitman
We are excited to announce a new video that brings awareness to the Moebius Syndrome Foundation (MSF). We hope it reaches far and wide and helps others learn more about Moebius syndrome and how the MSF can help support families and individuals affected by it. We are so grateful for our generous donors and advocates over the years that have helped us to fulfill our mission and improve the lives of so many within the Moebius community. We’ve come a ...READ MORE »

Moebius Syndrome Featured in Psychology Today!

Posted by Moebius Foundation
  Kathleen Bogart, Ph.D., is an Associate Professor of Psychology at Oregon State University. Her research focuses on the psychosocial implications of living with disability, rare disorders, or facial differences such as Moebius syndrome. Check out this informative article she wrote about Moebius syndrome! https://www.psychologytoday.com/us/blog/disability-is-diversity/202101/7-things-understand-moebius-syndrome-awareness-day

Press Release – Moebius Syndrome Awareness Day 2021

Posted by Moebius Foundation
Press Release – Moebius Syndrome Awareness Day 2021 The Many Faces Of Moebius Syndrome (www.mfoms.org), the Moebius Syndrome Foundation (www.moebiussyndrome.org), the Moebius Syndrome Research Trust (www.moebiusresearchtrust.org), the Children’s Craniofacial Association (www.ccakids.com), and Face Equality International (www.faceequalityinternational.org), are proud to announce the 11th annual Moebius Syndrome Awareness Day which will be celebrated worldwide on Sunday the 24th of January, 2021. Moebius Syndrome is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side ...READ MORE »