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The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

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Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

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Posted by Moebius Foundation
Kathleen Bogart and Tara Lewis wrote a fantastic blog post for NACE (National Association of Colleges and Employers about how employers can reduce bias toward people facial paralysis, especially now since virtual interviews are the norm. We are hoping to bring more awareness to employers as it relates to hiring people with Moebius syndrome and other conditions that cause facial paralysis. Stay tuned in the coming weeks for another post focused on strategies people with Moebius can use for successful interviews! READ MORE »

The Moebius Syndrome Foundation mourns the passing of our friend, Dr. James Partridge

Posted by Moebius Foundation
The Moebius Syndrome Foundation mourns the passing of our friend, Dr. James Partridge. Dr. Partridge was a giant in the movement for facial equality, and helped the Moebius Syndrome Foundation become a part of the Face Equality International alliance. He was a keynote speaker at two of our previous conferences, and a friend and mentor to many within the Moebius community. Our sincerest condolences go out to his family, friends, and partners within Face Equality International. We will miss him greatly, ...READ MORE »

FACE IT: Facial Disfigurement and My Fight for Face Equality

Posted by Moebius Foundation
James Partridge was eighteen when he was severely facially burned. FACE IT tells how he found a way to live happily with his distinctive face in our face-perfect society, turned the lessons he’d learned into practical empowerment for others with facial disfigurements, and launched the global campaign for ‘face equality’ for everyone, whatever their face looks like. FACE IT looks prejudice in the eye and refuses to blink. Ordering FACE IT directly