Moebius syndrome is an extremely rare condition with little awareness. We advocate to increase familiarity through Moebius Syndrome Awareness Day and regional events, and build community by providing ways for people to connect in-person and virtually.

Moebius Syndrome Conferences provide a place for individuals and families with Moebius syndrome to connect. Each conference offers a different line-up of professional speakers.

As of 2021, the Foundation has provided $1.4 million in research funding for numerous research grants and hosted 8 Research Symposiums.

Each year, the Moebius Syndrome Foundation Awards several educational scholarships of $3,000 each to individuals who have Moebius syndrome and are pursuing undergraduate, graduate and professional studies at colleges, universities and post-secondary vocational schools in the U.S. or Canada.