• Moebius Syndrome Foundation’s 25th Anniversary

    The Moebius Syndrome Foundation is celebrating its 25 years of community in 2019!

    MSF-Press-Release-for-FEI During the week of May 17 – 23, 2019, The Moebius Syndrome Foundation will be celebrating Face Equality Week. For more information, please visit www.faceequalityinternational.org.
  • Dr. Bryn Webb and Vicki McCarrell wrote and article for the Rare Neurological Disease Special Report supplement for Neurology Reviews to help raise awareness about Moebius Syndrome and the Moebius Syndrome Foundation. You can read the article here.
  • Spring 2019 Newsletter

    Upcoming conferences, scholarship deadlines, and the highlights from Moebius Syndrome Awareness Day are all included in the Spring 2019 newsletter. Read it here »
  • Ft. Worth Moebius Mini-Conference

    Join us on November 8-9, 2019 for Ft. Worth Mini-Conference! Adult Meet-ups, Educational Sessions, Lots of Networking, and Family Friendly Activities in what is known as “Cow Town.” If you’ve been thinking about visiting Texas, this is the …
  • Fall Newsletter 2018

    Our 2018 Fall Newsletter is now available. Included is our new Board of Directors, a wrap up of our conference, and a list of our generous donors. Read the newsletter here »
  • Moebius Syndrome Foundation Conference

    A huge thank you to all who attended our 2018 event! View photos, slideshow and presentations from the 13th Moebius Syndrome Foundation Conference here »
  • What is Moebius syndrome?

    Moebius syndrome is a nonprogressive craniofacial/neurological disorder. Individuals with Moebius syndrome cannot smile or frown, and do not have lateral eye movements. Learn more here and read about treatments.
  • Get involved

    There are many ways to get involved with the Moebius community. Volunteer, attend the conference, write for our bi-annual newsletter, host an event for Moebius Syndrome Awareness Day…find out how you can get involved!
  • Our stories

    We are college students and professors; students who excel in academia and teachers. We play sports, perform in bands, dance, and act. Across all ages, those living with Moebius lead fulfilling, productive lives. Read our stories »
  • 1
  • 2
  • 3
  • 4
  • 5
  • 6
  • 7
  • 8
  • 9
  • 10


The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

Facebook Twitter Vimeo LinkedIn Instagram

Campaign for face equality ‘becomes a global movement’ with the first International Face Equality Week

Posted by Moebius Foundation
MEDIA RELEASE: For Friday 17th May 2019 Campaign for face equality ‘becomes a global movement’ with the first International Face Equality Week The Moebius Syndrome Foundation is pleased to announce a week of awareness-raising events, media coverage and social media activity begins around the world today to promote ‘Face Equality’ — the fair treatment of people with facial and body differences and the elimination of disfigurement discrimination. The 30 NGOs that are members of Face Equality International, the new alliance representing people ...READ MORE »

Embracing visible differences: 2 Albertans with Moebius Syndrome share valuable lessons

Posted by Moebius Foundation
2 news segments featuring Kelsey Ferrill! https://globalnews.ca/video/rd/1431249475649/ Embracing visible differences: 2 Albertans with Moebius Syndrome share valuable lessons It was a brave step into the spotlight for a young woman living with a condition that makes her look different, but the Calgary woman is going beyond her comfort zone to give others a lesson on how to treat people with differences. Jill Croteau reports. Kelsey Ferrill knows firsthand what it’s like not looking like most people. The 28-year-old has spent her life making ...READ MORE »