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The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

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Moebius Syndrome Foundation Selects New Executive Director

Posted by Natalie Abbott
The Moebius Syndrome Foundation, the nation’s largest organization dedicated to the support of individuals and families with Moebius syndrome, is proud to announce Dina Scalone as its new Executive Director, effective July 1, 2018. Scalone has spent the majority of her career working in the nonprofit sector, most recently with Easterseals Blake Foundation in Tucson, Arizona, as their Chief Philanthropy Officer.  EBF is the largest nonprofit organization in southern Arizona, with an annual budget of more than $45 million. Nationally, Easterseals is the ...READ MORE »

Roshambo Sundraiser!

Posted by Moebius Foundation
We’re teaming up with ro•sham•bo baby sunglasses to help raise money for the Moebius Syndrome Foundation! Get 10% off your order with code: Moebius and ro•sham•bo baby will give 10% of your sale back to the Moebius Syndrome Foundation. Why should you buy these shades (besides from the fast that they are ridiculously adorable)? ro•sham•bo baby makes unbreakable sunglasses for babies, kids & adults. These Italian made shades offer 100% UVA/B/C protection with polarized lens options in all sizes! They even have ...READ MORE »

Foundation Welcomes New Board Members

Posted by Moebius Foundation
The Moebius Syndrome Foundation is pleased to announce that four new members have been added to the Board of Directors:   Bryn Webb, MD, New York City        Dr. Webb is Board Certified in Clinical Genetics and Pediatrics and is Assistant Professor in the Department of Genetics and Genomic Science & Pediatrics at the Ichan School of Medicine at Mt. Sinai Hospital in New York City.  She is also the Co-Director of the Cleft & Craniofacial Clinic at Mt. Sinai Hospital, and is ...READ MORE »