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The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

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Platinum Seal Awarded to Moebius Syndrome Foundation

Posted by Jenny Whitman
The Moebius Syndrome Foundation has been awarded the 2021 Platinum Seal, which shows the highest level of transparency and integrity in a non-profit. You can see our updated non-profit profile on Candid at: here.

2022 Moebius Syndrome Awareness Day Press Release

Posted by Jenny Whitman
The Moebius Syndrome Foundation has once again joined with the Many Faces of Moebius Syndrome, along with Face Equality International, and Children’s Craniofacial Association, in issuing a combined press release to raise awareness in the media about Moebius Syndrome Awareness Day in 2022.  Press Release

Gregory Osborne, DDS joins the Scientific Advisory Board

Posted by Jenny Whitman
The Moebius Syndrome Foundation is pleased to announce that Gregory Osborne, DDS has joined our Scientific Advisory Board. Dr. Osborne has participated in many past national conferences as a presenter and most recently supported our virtual educational webinar series. He has a daughter with Moebius syndrome and practices in San Antonio, Texas. Please visit our Scientific Advisory Board page to read more about Dr. Osborne.