Founded in 1994, the Moebius Syndrome Foundation has been the center of the Moebius syndrome community for nearly 30 years. Our conferences allow individuals with Moebius syndrome and their families to meet each other, build friendships, and find support. Researchers and medical professionals come together to advance our knowledge of Moebius syndrome. This is why – we are the Home for the Moebius Community™.
Your donation goes towards programming for adults and children with Moebius syndrome, and research, education, and awareness of Moebius syndrome.
Get updates on upcoming events, the work of the Moebius Syndrome Foundation, and more! Fill out the form below to receive an information packet, join our mailing list, and/or connect with other families and adults with Moebius syndrome living in your region. You may also use this form to update your contact information, e.g. a change of address.
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