• 1
  • 2
  • 3
  • 4
  • 5
  • 6
  • 7


The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

Facebook Twitter Vimeo LinkedIn Instagram

Two New Research Participation Opportunities Available

Posted by Jenny Whitman
The Moebius Syndrome Foundation is currently conducting research into sleeping disorders, as well as a psychological study about the experiences of informing people about a facial difference. We invite the Moebius community to help make these studies successful by participating in online surveys for each topic. For more information, please review the following flyers: Facial Difference Survey and Sleep Health Study.

New Sleep Study Research Grant Now Available

Posted by Jenny Whitman
Now through June 1, 2022, applications for ‘Grant Proposals to Study Moebius Syndrome and Sleep Disorders’ are being accepted by the Moebius Syndrome Foundation. Please visit this page for more information about this grant opportunity.

Smiling on the Inside: Living with Moebius Syndrome

Posted by Jenny Whitman
The Washington Family Magazine recently interviewed Jacob Licht and Rebecca Maher, members of the Moebius Syndrome Foundation Executive Committee, and wrote an article entitled Smiling on the Inside: Living with Moebius Syndrome. You can read the full article here.