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OUR MISSION

The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

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REQUEST FOR APPLICATIONS: Grant Proposal to Study Moebius Syndrome and Sleep Disorders

Posted by Moebius Foundation
REQUEST FOR APPLICATIONS: Grant Proposal to Study Moebius Syndrome and Sleep Disorders The MSF Grant Program provides seed-money grants to qualified investigators for scientific and/or clinical research.  The Moebius Syndrome Foundation has identified a need for additional investigation into the role of Moebius syndrome and sleep disturbances.  Anecdotally, many persons with Moebius syndrome have described difficulties with sleep, including, but not limited to, difficulty falling asleep, difficulty staying asleep, night terrors, sleep walking, sleep apnea, and decreased quality of sleep.  The ...READ MORE »

Media urged to take care with language, tone and imagery when covering disfigurement

Posted by Moebius Foundation
Media Release Embargo 0001 Wednesday 5th February 2020 Media urged to take care with language, tone and imagery when covering disfigurement A new International Media Standard on Disfigurement has been launched today by Face Equality International, the global alliance representing people with facial disfigurements. Formed 12 months ago, Face Equality International’s first major priority as defined by its 33 NGO members was to produce internationally-applicable standards for the media and broadcasters. The new Standard is designed both to guide best practice in reporting on ...READ MORE »