• Educational Scholarships Awarded!

    We are excited to announce that the Moebius Syndrome Foundation has awarded four young people with Post-Secondary Educational Scholarships! Read more.
  • Moebius Syndrome Foundation Conference

    13th Moebius Syndrome Foundation Conference is July 20-22, 2018 in St. Petersburg, Florida – Registration ended June 30, 2018. Hotel & Registration have reached capacity.
  • What is Moebius syndrome?

    Moebius syndrome is a nonprogressive craniofacial/neurological disorder. Individuals with Moebius syndrome cannot smile or frown, and do not have lateral eye movements. Learn more here and read about treatments.
  • Get involved

    There are many ways to get involved with the Moebius community. Volunteer, attend the conference, write for our bi-annual newsletter, host an event for Moebius Syndrome Awareness Day…find out how you can get involved!
  • Our stories

    We are college students and professors; students who excel in academia and teachers. We play sports, perform in bands, dance, and act. Across all ages, those living with Moebius lead fulfilling, productive lives. Read our stories »
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The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

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Moebius Syndrome Foundation Selects New Executive Director

Posted by Natalie Abbott
The Moebius Syndrome Foundation, the nation’s largest organization dedicated to the support of individuals and families with Moebius syndrome, is proud to announce Dina Scalone as its new Executive Director, effective July 1, 2018. Scalone has spent the majority of her career working in the nonprofit sector, most recently with Easterseals Blake Foundation in Tucson, Arizona, as their Chief Philanthropy Officer.  EBF is the largest nonprofit organization in southern Arizona, with an annual budget of more than $45 million. Nationally, Easterseals is the ...READ MORE »

Moebius Syndrome Foundation Conference Is Closed

Posted by Natalie Abbott
Registration for the Moebius Syndrome Foundation Conference closed early, on June 30.  The conference registration and hotel have both reached capacity.  We are thrilled so many people will be attending the conference, and regret that people who had hoped to attend but have not yet registered will not be able to.  There will be no on-site registration or any further Single Day Passes sold.  Please let us know if you have any questions or need further information.  Thank you for ...READ MORE »

Roshambo Sundraiser!

Posted by Moebius Foundation
We’re teaming up with ro•sham•bo baby sunglasses to help raise money for the Moebius Syndrome Foundation! Get 10% off your order with code: Moebius and ro•sham•bo baby will give 10% of your sale back to the Moebius Syndrome Foundation. Why should you buy these shades (besides from the fast that they are ridiculously adorable)? ro•sham•bo baby makes unbreakable sunglasses for babies, kids & adults. These Italian made shades offer 100% UVA/B/C protection with polarized lens options in all sizes! They even have ...READ MORE »