• 1
  • 2
  • 3
  • 4
  • 5


The Moebius Syndrome Foundation's mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and to advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions.

For Parents

Was your newborn recently diagnosed with Moebius syndrome? Have an older child with Moebius?

For Professionals

Healthcare professionals, researchers and those who want more information on Moebius, click here »

For Adults and Young Adults

Interested in getting involved or connecting with others living with Moebius?
Learn more »

For Friends and Relatives

Learn about Moebius syndrome and ways you can support your loved one.
Learn more »

Facebook Twitter Vimeo LinkedIn Instagram

Don’t Stop Now: How to Use Your Power of Generosity to Drive Change!

Posted by Moebius Foundation
You made a plan to vote, now make a plan to give. Voting is one important way to voice your desire for change, and giving back to your community or a cause you’re passionate about is another tangible way to make a difference. As we wait for the confirmed results of the election in the U.S., there are still so many powerful ways to take action for positive impact. Each and every day we have the opportunity to change things for ...READ MORE »


Posted by Moebius Foundation
Kathleen Bogart and Tara Lewis wrote a fantastic blog post for NACE (National Association of Colleges and Employers about how employers can reduce bias toward people facial paralysis, especially now since virtual interviews are the norm. We are hoping to bring more awareness to employers as it relates to hiring people with Moebius syndrome and other conditions that cause facial paralysis. Stay tuned in the coming weeks for another post focused on strategies people with Moebius can use for successful interviews! READ MORE »

The Moebius Syndrome Foundation mourns the passing of our friend, Dr. James Partridge

Posted by Moebius Foundation
The Moebius Syndrome Foundation mourns the passing of our friend, Dr. James Partridge. Dr. Partridge was a giant in the movement for facial equality, and helped the Moebius Syndrome Foundation become a part of the Face Equality International alliance. He was a keynote speaker at two of our previous conferences, and a friend and mentor to many within the Moebius community. Our sincerest condolences go out to his family, friends, and partners within Face Equality International. We will miss him greatly, ...READ MORE »