A few weeks back I was speaking with someone and they mentioned that members of the Moebius community want to raise awareness of the condition and that some have done a really good job of working with their local schools, government representatives and media. My background is in public relations/communications but also in advocacy, so my ears perked up. After a lot of planning, we are proud to announce the Moebius Syndrome Foundation Champion™ Program. For those that are interested, we ...READ MORE »