*Announcement* The Moebius Syndrome Foundation is expanding its Young Adult Advisory Board to include a more diverse age range. We are now seeking applications from young adults with Moebius syndrome aged 16-25 to join. This group will serve an advisory role to the Moebius Syndrome Foundation Board of Directors, keeping them appraised of issues relevant to their age group. For example, the board may suggest ideas for conferences and engage in social media campaigns. The board will meet via videochat approximately ...READ MORE »

  The Moebius Syndrome Foundation is so excited to announce that it has received the Global Genes RARE Patient Impact Grant. The grant support will educate the Moebius community about Oral Placement Therapy at the upcoming Moebius Syndrome Foundation Conference. For the first time, Feeding and Speech Clarity consultations will be offered free of charge! Two therapists will provide individual speech & feeding consultations. Each is a 45 minute evaluation which  provides an overview of the muscle based activities that ...READ MORE »