The Moebius Syndrome Foundation is now accepting applications for Regional Coordinators (RCs). A Regional Coordinator is a volunteer, non-paid position. We are excited to expand the structure of the organization and the possibilities for future events. We will be creating MSF Chapters around the country, which will provide all with an opportunity to meet in person on a more frequent basis than the conference. This fall, the Moebius Syndrome Foundation will be hosting the Mighty Moebius Walk & 5K!! With all of these great ...READ MORE »
Monthly Archives: March 2016
We celebrated Rare Disease Day on February 29th. Watch the first five minutes of #RareDiseaseDay and see National Institutes of Health (NIH) Director Francis Collins spotlight Moebius syndrome! The day was established to raise awareness with the public about rare diseases, the challenges encountered by those affected, the importance of research to develop diagnostics and treatments, and the impact of these diseases on patients’ lives.