Month

March 2016
The Moebius Syndrome Foundation is now accepting applications for Regional Coordinators (RCs). A Regional Coordinator is a volunteer, non-paid position. We are excited to expand the structure of the organization and the possibilities for future events. We will be creating MSF Chapters around the country, which will provide all with an opportunity to meet in person on...
We celebrated Rare Disease Day on February 29th. Watch the first five minutes of ‪#‎RareDiseaseDay‬ and see National Institutes of Health (NIH) Director Francis Collins spotlight Moebius syndrome! The day was established to raise awareness with the public about rare diseases, the challenges encountered by those affected, the importance of research to develop diagnostics and treatments,...