Living with Facial Weakness?  The NIH wants to hear from you. The research team aims to learn people’s views on how facial weakness affects or does not affect their everyday lives. The data will be used to understand the experiences of adults and adolescents from their own perspective. The survey takes approximately 20 minutes to complete; please take your time and answer each question honestly. Some items are quite similar, but they assess distinct preferences and are important because they give ...READ MORE »

The Moebius Syndrome Foundation has awarded three young people with the Post-Secondary Educational Scholarships. We are pleased to announce that those awarded with $2,000 scholarships toward their college tuition are Brianna Kelley, Mike Gonzalez and Dominque Piotrowski. Congratulations!!   Brianna Kelley of Lawrenceville, GA, will attend the University of Iowa where she will pursue her doctorate in Communication Sciences and Disorders. Brianna is a member of Phi Kappa Phi, Golden Key International Honor Society, Sigma Alpha Lambda, and Phi Theta Kappa. She ...READ MORE »