2020 Minneapolis Moebius Syndrome Conference- Schedule of Events
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July 17 – 19, 2020
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| Date | Event | Time | Location | Speaker |
| Thurs. 7/16/20 | Research Symposium | 9:00 – 17:00 | Elm Creek Ampitheater | |
| Registration | 13:00 – 17:00 | Great Hall Foyer | ||
| Adult Moebius Only Social | 18:00 – 19:30 |
Fireside Room or Northland Prefunction
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| Fri. 7/17/20 | Registration Opens | 7:00 – 17:00 | Northland Hallway | |
| Breakfast | 7:00 – 9:00 | Northland Hallway | ||
| Child Care Opens | 8:30 – 12:00 | Minnesota 1&2 | Kiddie Corp | |
| Conference Overview | 8:45 – 9:25 | Northland Ballroom | Vicki McCarrell | |
| Wonder Program – ages 6-10 | 9:30 – 10:30 | Lake Michigan | Children’s Craniofacial Assoc. | |
| Wonder Program – ages 10 – 12 | 10:30 – 11:30 | Lake Michigan | Children’s Craniofacial Assoc. | |
| Communications Workshop (teens) | 9:30 – 12:00 | Lake Huron | Kathleen Bogart | |
| Break Out Sessions | ||||
| Session #1 Sleep Specialist | 9:30 – 10:30 | Elm Creek Ampitheater | Dr. Suresh Kotagal | |
| Session #2 Blinking Surgery | 9:30 – 10:30 | Hennepin 1 | Dr. Greg Borschel | |
| Session #3 Self Esteem | 9:30 – 10:30 | Arbor Lakes | Leah Stock Landis | |
| Session #4 Pulmonology | 9:30 – 10:30 | Hennepin 2 | Dr. Michael Shreve (TBC) | |
| Session #5 Preparing for the Job World, part 1 | 9:30 – 10:30 | Hennepin 3 | Sean Roy | |
| Break Out Sessions | ||||
| Session #1 Neurology | 10:45 – 11:45 | Elm Creek Ampitheater | Dr. Suresh Kotagal | |
| Session #2 Hand Surgery | 10:45 – 11:45 | Hennepin 1 | Dr. Greg Borschel | |
| Session #3 Depression and Mental Health | 10:45 – 11:45 | Arbor Lakes | Leah Stock Landis | |
| Session #4 Building Confidence in Families | 10:45 – 11:45 | Hennepin 2 | Will Harrison / Steven Maldonado | |
| Session #5 Preparing for the Job World, part 2 | 10:45 – 11:45 | Hennepin 3 | Sean Roy | |
| Child Care Closes | 12:00 | Minnesota 1 & 2 | ||
| Lunch | 12:00 – 13:00 | Northland Ballroom | Research Session | |
| Child Care Opens | 12:45 – 18:00 | Minnesota 1 & 2 | ||
| Keynote | 13:00 – 14:30 | Northland Ballroom | Susana Romero | |
| Children’s Speaker (ages 7-9) | 13:00 – 14:30 | Lake Michigan | Dr. Rhonda Robert | |
| Children’s Speaker (ages 10-12) | 14:30 – 16:30 | Lake Michigan | Dr. Rhonda Robert | |
| Break Out Sessions | ||||
| Session #1 Genetic Research into Moebius Syndrome | 14:45 – 16:00 | Elm Creek Ampitheater | Drs. Jabs, Engle, Manoli, Webb | |
| Session #2 Confidence in Adults | 14:45 – 16:00 | Hennepin 1 | Steven Maldonado / Will Harrison | |
| Session #3 Therapy for the Face | 14:45 – 16:00 | Hennepin 2 | Jackie Diels | |
| Session #4 Speech Communications | 14:45 – 16:00 | Arbor Lakes | Dr. Erika Levy | |
| Session #5 Resume Tips | 14:45 – 16:00 | Hennepin 3 | Sean Roy | |
| Just for Sessions | ||||
| Moms | 16:15 – 17:45 | Lake Huron | Paula Keebler | |
| Dads | 16:15 – 17:45 | Lake Michigan | Kevin Smant | |
| Women | 16:15 – 17:45 | Lake Ontario | Kathleen Bogart | |
| Men | 16:15 – 17:45 | Lake Erie | Steven Maldonado | |
| Grandparents | 16:15 – 17:45 | Arbor Lakes | Bobby and Chelle Meadows | |
| Teens | 16:15 – 17:45 | Room A | Austin Halls | |
| Just for Parents | 16:15 – 17:45 | Hennepin 1 | Nicole Zeitler | |
| Just for Siblings | 16:15 – 17:45 | Hennepin 2 | ||
| Just for Spanish | Fireside Room | Valeria Perez | ||
| Child Care Closes | 18:00 | Minnesota 1 & 2 | ||
| Welcome Reception | 18:00 – 20:00 | Northland Hallway | ||
| Mom’s Night Out | 20:00 | Fireside Room | ||
| Sat. 7/18/20 | Breakfast | 7:00 – 9:00 | Northland Ballroom | |
| Registration, Sales, Consults Open | 7:00 – 17:00 | Northland Hallway | ||
| Child Care Opens | 8:45 – 12:00 | Minnesota 1 & 2 | ||
| State of the Foundation | 9:00 – 9:15 | Northland Ballroom | Dina Scalone | |
| Session #1 Music Workshop for Adults with and Teens with Moebius | 9:15 – 9:45 | Hennepin 1 | Tone Works Music Therapy | |
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Music Workshop for Teens with Moebius
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9:15 – 9:45 | Hennepin 1 | Tone Works Music Therapy | |
| Session #2 Congenital Eye Paralysis | 9:15 – 10:30 | Hennepin 2 | Dr. Gilles VannuCorps | |
| Session #3 Self Esteem | 9:15 – 10:30 | Hennepin 3 | Dr. Leah Stock-Landis | |
| Music Workshop for All Children | 10:00 – 10:30 | Minnesota 1 | Tone Works Music Therapy | |
| Break Out Sessions | ||||
| Session #1 Opthamology | 10:45 – 12:00 | Hennepin 2 | Dr. Hunter | |
| Session #2 Orthopedic Surgery | 10:45 – 12:00 | Hennepin 3 | Dr. Philip McClure | |
| Session #3 Depression | 10:45 – 12:00 | Arbor Lakes | Dr. Leah Stock-Landis | |
| Session #4 Sing Me A Story for Teens | 10:45 – 12:00 | Hennepin 1 | Bobby & Chelle Meadow and Jen Garvey | |
| Session #5 A Bright Future: Looking Beyond Moebius Syndrome | 10:45 – 11:15 | Elm Creek Ampitheater | Emoni Williams, Austin Halls, Kevin Smant, Jessica Maher | |
| Child Care Closes | 12:00 | Minnesota 1 & 2 | ||
| Group Photos | 12:15 – 12:30 | TBD | ||
| Lunch & Keynote | 12:30 – 14:00 | Northland Ballroom | ||
| Child Care re-opens | 13:30 – 17:45 | Minnesota 1 & 2 | ||
| Break Out Sessions | ||||
| Session #1 Caregiver Burnout | 14:15 – 14:50 | Hennepin 1 | Pat Lang | |
| Session #2 Raising Awareness | 14:15 – 14:50 | Hennepin 2 | Dina Scalone | |
| Session #3 Speech Therapy for Younger Children | 14:15 – 14:50 | Hennepin 3 | Renee Roy Hill | |
| Session #4 Massage Therapy and Relaxation | 14:15 – 14:50 | Arbor Lakes | Julie Leahy | |
| Session #5 Sing Me a Story for All Children | 14:15 – 15:00 | Minnesota 1 | Bobby & Chelle Meadows and Jen Garvey | |
| Coffee Break | 14:45 – 15:00 | Northland Hallway | ||
| Break Out Sessions | ||||
| Session #1 Caregiver Burnout | 15:00 – 15:45 | Hennepin 1 | Pat Lang | |
| Session #2 Speech Therapy for Older Children | 15:00 – 15:45 | Hennepin 2 | Renee Roy Hill | |
| Session #3 ADA 101 | 15:00 – 15:45 | Hennepin 3 | Nicole Zeitler | |
| Session #4 Special Needs Planner, Part 1 | 15:00 – 15:45 | Arbor Lakes | Roger Strege, CES | |
| Break Out Sessions | ||||
| Session #1 Positive Exposure | 15:55 – 16:40 | Hennepin 1 | Rick Guidotti | |
| Session #2 Feeding Tube Tips | 15:55 – 16:40 | Hennepin 2 | Kacie Nievesmassol | |
| Session #3 Bullying and Chronic Health Conditions | 15:55 – 16:40 | Hennepin 3 | Dr. Rhonda Robert | |
| Session #4 Special Needs Planner, part 2 | 15:55 – 16:40 | Arbor Lakes | Roger Strege, CES | |
| Just for Sessions | ||||
| Moms | 16:45 – 17:30 | Lake Huron | Paula Santana | |
| Dads | 16:45 – 17:30 | Lake MIchigan | Kevin Smant | |
| Women | 16:45 – 17:30 | Lake Ontario | Kathleen Bogart | |
| Men | 16:45 – 17:30 | Lake Erie | Steven Maldonado | |
| Grandparents | 16:45 – 17:30 | Arbor Lakes | Bobby & Chelle Meadows | |
| Teens | 16:45 – 17:30 | Fireside Room | Austin Halls | |
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Just for Parents of Medically Complex
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16:45 – 17:30 | Hennepin 1 | Nicole Zeitler | |
| Just for Spanish | 16:45 – 17:30 | Northland 1 | Valeria Perez | |
| Just for Canadians | 16:45 – 17:30 | Elm Creek Ampitheather | Kelsey Ferrill | |
| Just for Siblings | 16:45 – 17:30 | Hennepin 2 | ||
| Just for Everyone Else | 16:45 – 17:30 | Northland 2 | ||
| Raffles & Sales Close | 17:00 | Northland Hallway | ||
| Consults Close- no further consults during conference | 17:00 | |||
| Child Care closes | 17:45 | Minnesota 1 & 2 | ||
| Dinner & Talent Show | 17:30 – 21:30 | Northland Ballroom | ||
| Dad’s Night Out | 21:30 | Fireside Room | ||
| Sun. 7/19/20 | Breakfast | 7:00 – 9:00 | Northland Ballroom | |
| Registration & Sales Open | 7:30 – 12:00 | Northland Hallway | ||
| SAB Q&A | 9:00 – 10:00 | Northland Ballroom | ||
| Fire Engine Visits Children | 9:00 – 9:45 | |||
| Northstar Therapy Animals | 10:00 – 11:30 | Minnesota 1 & 2 | ||
| Writing Workshop for Adults and Teens with Moebius | 10:00 – 11:00 | |||
| Young Adult and Teen Talk: What I Wish My Parents Had Known | 10:00 – 11:00 | Northland Ballroom | ||
| Art Therapy for Adults and Teens with Moebius | 11:00 – 12:00 | Hennepin 1 | Simply Jane Studio | |
| Genetic Research into Moebius Syndrome | 11:00 – 12:15 | Northland Ballroom | Drs. Jabs, Engle, Webb and Scientific Advisory Board | |
| Lunch & $5 Raffle | 12:30 – 13:30 | Northland Ballroom | ||
| Closing Remarks, Slideshow & Invitation to Atlanta in 2022 | 13:30 – 14:00 | Northland Ballroom | ||
| Mon. 7/20/20 | Optional Outside Excursions |
Mall of America and Mississippi River Cruise
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Sign up for optional activities on conference registration form. |
CONTACT US
844-MOEBIUS
(844-663-2487)
Moebius Syndrome Foundation
P.O. Box 147
Pilot Grove, MO 65276
info@moebiussyndrome.org