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Moebius Syndrome Foundation
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2020 Minneapolis Moebius Syndrome Conference- Schedule of Events

July 17 – 19, 2020
Date Event Time Location Speaker
Thurs. 7/16/20 Research Symposium 9:00 – 17:00 Elm Creek Ampitheater
Registration 13:00 – 17:00 Great Hall Foyer
Adult Moebius Only Social 18:00 – 19:30
Fireside Room or Northland Prefunction
Fri. 7/17/20 Registration Opens 7:00 – 17:00 Northland Hallway
Breakfast 7:00 – 9:00 Northland Hallway
Child Care Opens 8:30 – 12:00 Minnesota 1&2 Kiddie Corp
Conference Overview 8:45 – 9:25 Northland Ballroom Vicki McCarrell
Wonder Program – ages 6-10 9:30 – 10:30 Lake Michigan Children’s Craniofacial Assoc.
Wonder Program – ages 10 – 12 10:30 – 11:30 Lake Michigan Children’s Craniofacial Assoc.
Communications Workshop (teens) 9:30 – 12:00 Lake Huron Kathleen Bogart
Break Out Sessions
Session #1 Sleep Specialist 9:30 – 10:30 Elm Creek Ampitheater Dr. Suresh Kotagal
Session #2 Blinking Surgery 9:30 – 10:30 Hennepin 1 Dr. Greg Borschel
Session #3 Self Esteem 9:30 – 10:30 Arbor Lakes Leah Stock Landis
Session #4 Pulmonology 9:30 – 10:30 Hennepin 2 Dr. Michael Shreve (TBC)
Session #5 Preparing for the Job World, part 1 9:30 – 10:30 Hennepin 3 Sean Roy
Break Out Sessions
Session #1 Neurology 10:45 – 11:45 Elm Creek Ampitheater Dr. Suresh Kotagal
Session #2 Hand Surgery 10:45 – 11:45 Hennepin 1 Dr. Greg Borschel
Session #3 Depression and Mental Health 10:45 – 11:45 Arbor Lakes Leah Stock Landis
Session #4 Building Confidence in Families 10:45 – 11:45 Hennepin 2 Will Harrison / Steven Maldonado
Session #5 Preparing for the Job World, part 2 10:45 – 11:45 Hennepin 3 Sean Roy
Child Care Closes 12:00 Minnesota 1 & 2
Lunch 12:00 – 13:00 Northland Ballroom Research Session
Child Care Opens 12:45 – 18:00 Minnesota 1 & 2
Keynote 13:00 – 14:30 Northland Ballroom Susana Romero
Children’s Speaker (ages 7-9) 13:00 – 14:30 Lake Michigan Dr. Rhonda Robert
Children’s Speaker (ages 10-12) 14:30 – 16:30 Lake Michigan Dr. Rhonda Robert
Break Out Sessions
Session #1 Genetic Research into Moebius Syndrome 14:45 – 16:00 Elm Creek Ampitheater Drs. Jabs, Engle, Manoli, Webb
Session #2 Confidence in Adults 14:45 – 16:00 Hennepin 1 Steven Maldonado / Will Harrison
Session #3 Therapy for the Face 14:45 – 16:00 Hennepin 2 Jackie Diels
Session #4 Speech Communications 14:45 – 16:00 Arbor Lakes Dr. Erika Levy
Session #5 Resume Tips 14:45 – 16:00 Hennepin 3 Sean Roy
Just for Sessions
Moms 16:15 – 17:45 Lake Huron Paula Keebler
Dads 16:15 – 17:45 Lake Michigan Kevin Smant
Women 16:15 – 17:45 Lake Ontario Kathleen Bogart
Men 16:15 – 17:45 Lake Erie Steven Maldonado
Grandparents 16:15 – 17:45 Arbor Lakes Bobby and Chelle Meadows
Teens 16:15 – 17:45 Room A Austin Halls
Just for Parents 16:15 – 17:45 Hennepin 1 Nicole Zeitler
Just for Siblings 16:15 – 17:45 Hennepin 2
Just for Spanish Fireside Room Valeria Perez
Child Care Closes 18:00 Minnesota 1 & 2
Welcome Reception 18:00 – 20:00 Northland Hallway
Mom’s Night Out 20:00 Fireside Room
Sat. 7/18/20 Breakfast 7:00 – 9:00 Northland Ballroom
Registration, Sales, Consults Open 7:00 – 17:00 Northland Hallway
Child Care Opens 8:45 – 12:00 Minnesota 1 & 2
State of the Foundation 9:00 – 9:15 Northland Ballroom Dina Scalone
Session #1 Music Workshop for Adults with and Teens with Moebius 9:15 – 9:45 Hennepin 1 Tone Works Music Therapy
Music Workshop for Teens with Moebius
9:15 – 9:45 Hennepin 1 Tone Works Music Therapy
Session #2 Congenital Eye Paralysis 9:15 – 10:30 Hennepin 2 Dr. Gilles VannuCorps
Session #3 Self Esteem 9:15 – 10:30 Hennepin 3 Dr. Leah Stock-Landis
Music Workshop for All Children 10:00 – 10:30 Minnesota 1 Tone Works Music Therapy
Break Out Sessions
Session #1 Opthamology 10:45 – 12:00 Hennepin 2 Dr. Hunter
Session #2 Orthopedic Surgery 10:45 – 12:00 Hennepin 3 Dr. Philip McClure
Session #3 Depression 10:45 – 12:00 Arbor Lakes Dr. Leah Stock-Landis
Session #4 Sing Me A Story for Teens 10:45 – 12:00 Hennepin 1 Bobby & Chelle Meadow and Jen Garvey
Session #5 A Bright Future: Looking Beyond Moebius Syndrome 10:45 – 11:15 Elm Creek Ampitheater Emoni Williams, Austin Halls, Kevin Smant, Jessica Maher
Child Care Closes 12:00 Minnesota 1 & 2
Group Photos 12:15 – 12:30 TBD
Lunch & Keynote 12:30 – 14:00 Northland Ballroom
Child Care re-opens 13:30 – 17:45 Minnesota 1 & 2
Break Out Sessions
Session #1 Caregiver Burnout 14:15 – 14:50 Hennepin 1 Pat Lang
Session #2 Raising Awareness 14:15 – 14:50 Hennepin 2 Dina Scalone
Session #3 Speech Therapy for Younger Children 14:15 – 14:50 Hennepin 3 Renee Roy Hill
Session #4 Massage Therapy and Relaxation 14:15 – 14:50 Arbor Lakes Julie Leahy
Session #5 Sing Me a Story for All Children 14:15 – 15:00 Minnesota 1 Bobby & Chelle Meadows and Jen Garvey
Coffee Break 14:45 – 15:00 Northland Hallway
Break Out Sessions
Session #1 Caregiver Burnout 15:00 – 15:45 Hennepin 1 Pat Lang
Session #2 Speech Therapy for Older Children 15:00 – 15:45 Hennepin 2 Renee Roy Hill
Session #3 ADA 101 15:00 – 15:45 Hennepin 3 Nicole Zeitler
Session #4 Special Needs Planner, Part 1 15:00 – 15:45 Arbor Lakes Roger Strege, CES
Break Out Sessions
Session #1 Positive Exposure 15:55 – 16:40 Hennepin 1 Rick Guidotti
Session #2 Feeding Tube Tips 15:55 – 16:40 Hennepin 2 Kacie Nievesmassol
Session #3 Bullying and Chronic Health Conditions 15:55 – 16:40 Hennepin 3 Dr. Rhonda Robert
Session #4 Special Needs Planner, part 2 15:55 – 16:40 Arbor Lakes Roger Strege, CES
Just for Sessions
Moms 16:45 – 17:30 Lake Huron Paula Santana
Dads 16:45 – 17:30 Lake MIchigan Kevin Smant
Women 16:45 – 17:30 Lake Ontario Kathleen Bogart
Men 16:45 – 17:30 Lake Erie Steven Maldonado
Grandparents 16:45 – 17:30 Arbor Lakes Bobby & Chelle Meadows
Teens 16:45 – 17:30 Fireside Room Austin Halls
Just for Parents of Medically Complex
16:45 – 17:30 Hennepin 1 Nicole Zeitler
Just for Spanish 16:45 – 17:30 Northland 1 Valeria Perez
Just for Canadians 16:45 – 17:30 Elm Creek Ampitheather Kelsey Ferrill
Just for Siblings 16:45 – 17:30 Hennepin 2
Just for Everyone Else 16:45 – 17:30 Northland 2
Raffles & Sales Close 17:00 Northland Hallway
Consults Close- no further consults during conference 17:00
Child Care closes 17:45 Minnesota 1 & 2
Dinner & Talent Show 17:30 – 21:30 Northland Ballroom
Dad’s Night Out 21:30 Fireside Room
Sun. 7/19/20 Breakfast 7:00 – 9:00 Northland Ballroom
Registration & Sales Open 7:30 – 12:00 Northland Hallway
SAB Q&A 9:00 – 10:00 Northland Ballroom
Fire Engine Visits Children 9:00 – 9:45
Northstar Therapy Animals 10:00 – 11:30 Minnesota 1 & 2
Writing Workshop for Adults and Teens with Moebius 10:00 – 11:00
Young Adult and Teen Talk: What I Wish My Parents Had Known 10:00 – 11:00 Northland Ballroom
Art Therapy for Adults and Teens with Moebius 11:00 – 12:00 Hennepin 1 Simply Jane Studio
Genetic Research into Moebius Syndrome 11:00 – 12:15 Northland Ballroom Drs. Jabs, Engle, Webb and Scientific Advisory Board
Lunch & $5 Raffle 12:30 – 13:30 Northland Ballroom
Closing Remarks, Slideshow & Invitation to Atlanta in 2022 13:30 – 14:00 Northland Ballroom
Mon. 7/20/20 Optional Outside Excursions
Mall of America and Mississippi River Cruise
 Sign up for optional activities on conference registration form.

 

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