• About Moebius
    • What is Moebius syndrome?
    • For the newly diagnosed
    • For infants and children living with Moebius syndrome
    • For young adults
    • For adults living with Moebius syndrome
    • For friends and relatives
    • For professionals
    • Treatment options
  • Who we are
    • Mission and History
    • Foundation Leadership
    • Scientific Advisory Board
    • Press room
    • Our stories
    • Financial Overview
  • Support & Resources
    • Videos, Webinars, and Products
    • Articles, Publications & Books
    • Moebius Syndrome Foundation Educational Scholarship Program
    • School Resources
    • Connect with Others
    • Newsletters
    • Partner organizations
    • Employment resources
    • Financial resources
    • Listing of healthcare service providers
    • Dental concerns
    • Moebius Syndrome Foundation Online Store
  • Events
    • 2023 Moebius Syndrome Foundation Minneapolis Conference
    • Moebius Syndrome Awareness Day
    • Past Conferences
    • Moebius Syndrome Foundation Scientific Research Symposium
  • Get involved
    • Join Now
    • Donate
    • Moebius Syndrome Foundation Legacy Society
  • Research
    • Overview
    • NIH research study
    • Scientific Advisory Board
    • Research symposiums
    • Research articles
  • Videos
  • About Moebius »
    • What is Moebius syndrome? »
    • For the newly diagnosed »
    • For infants and children living with Moebius syndrome »
    • For young adults »
    • For adults living with Moebius syndrome »
    • For friends and relatives »
    • For professionals »
    • Treatment options »
  • Who we are »
    • Mission and History »
    • Foundation Leadership »
    • Scientific Advisory Board »
    • Press room »
    • Our stories »
    • Financial Overview »
  • Support & Resources »
    • Videos, Webinars, and Products »
    • Articles, Publications & Books »
    • Moebius Syndrome Foundation Educational Scholarship Program »
    • School Resources »
    • Connect with Others »
    • Newsletters »
    • Partner organizations »
    • Employment resources »
    • Financial resources »
    • Listing of healthcare service providers »
    • Dental concerns »
    • Moebius Syndrome Foundation Online Store »
  • Events »
    • 2023 Moebius Syndrome Foundation Minneapolis Conference »
    • Moebius Syndrome Awareness Day »
    • Past Conferences »
    • Moebius Syndrome Foundation Scientific Research Symposium »
  • Get involved »
    • Join Now »
    • Donate »
    • Moebius Syndrome Foundation Legacy Society »
  • Research »
    • Overview »
    • NIH research study »
    • Scientific Advisory Board »
    • Research symposiums »
    • Research articles »
  • Videos »
 
 
Moebius Syndrome Foundation
Platinum Transparency Award

The Home for the Moebius Community TM

Make a donation » Leave a Legacy » Join or Update »
  • Recent Posts

    • 2023 Educational Scholarship Awardees Announced
    • 2023 Moebius Syndrome Foundation Spring Newsletter
    • News Article: Overcoming the Challenges of Moebius Syndrome
    • Press Release: Moebius Syndrome Foundation Announces Awareness Campaign
    • 2022 Moebius Syndrome Foundation Atlanta Conference Concludes
  • Archives

    • May 2023
    • December 2022
    • November 2022
    • July 2022
    • May 2022
    • March 2022
    • January 2022
    • December 2021
    • November 2021
    • August 2021
    • July 2021
    • May 2021
    • February 2021
    • January 2021
    • December 2020
    • August 2020
    • May 2020
    • February 2020
    • January 2020
    • December 2019
    • November 2019
    • June 2019
    • May 2019
    • February 2019
    • February 2018
    • January 2018
    • May 2017
    • February 2017
    • January 2017
    • December 2016
    • March 2016
    • February 2016
    • September 2015
  • Categories

    • General
    • Uncategorized

CONTACT US

844-MOEBIUS  

(844-663-2487)

Moebius Syndrome Foundation

1312 17th Street #976
Denver, Colorado  80202

info@moebiussyndrome.org

Facebook Twitter Vimeo LinkedIn Instagram

Monthly Archives: January 2020

Facial Paralysis Social-Emotional Survey Results

Posted by Jenny Whitman

The largest study of facial paralysis finds it is more stigmatized than other neurological conditions. This stigma leads to high levels of anxiety and depression, especially for people with acquired FP. Thank you Moebius Syndrome Foundation Scientific Advisory Board Member,     Kathleen Bogart, Ph.D.  for this important research. Check out the results here: https://liberalarts.oregonstate.edu/sites/liberalarts.oregonstate.edu/files/facial_paralysis_social-emotional_survey_results-200103_01.pdf

Posted in Uncategorized |

MOEBIUS SYNDROME AWARENESS DAY JANUARY 24 2020

Posted by Jenny Whitman

Press Release – Moebius Syndrome Awareness Day 2020 The Many Faces Of Moebius Syndrome (www.manyfacesofmoebiussyndrome.org), The Moebius Syndrome Foundation (www.moebiussyndrome.org) , The Moebius Syndrome Research Trust (www.moebiusresearchtrust.org), and The Children’s Craniofacial Association (www.ccakids.com) are proud to announce the 10th annual Moebius Syndrome Awareness Day which will be celebrated worldwide on Friday the 24th of January, 2020. Moebius Syndrome is an extremely rare congenital neurological disorder which is characterized by facial paralysis and the inability to move the eyes from side to side. ...READ MORE »

Posted in Uncategorized |

Should I Disclose Moebius Syndrome During a Job Interview?

Posted by Jenny Whitman

Contributed by Stephen Maldonado This is a common question in the Moebius Community. Honestly, this is a very personal choice, and there may not be a clear cut answer. Therefore, instead of trying to answer this in a “yes” or “no” form, here are some reasons why someone might choose to disclose or not disclose. Reasons You Might Choose to Disclose: It Makes You Feel More Comfortable. You may choose to disclose if doing so makes you feel more comfortable in your interview. ...READ MORE »

Posted in Uncategorized |

10 Career Experts Share Their #1 Piece of Job Search Advice

Posted by Jenny Whitman

Once you announce that you’re looking for a new gig, unsolicited job search advice is inescapable: “Video resumes are the future!” “Go back to school!” “Talk to my cousin’s best friend’s son, he knows someone who used to intern there!” While all of the people sharing job search advice like this are well-meaning, they’re usually not career connoisseurs — just friends and family who want to help you out. As a result, the quality of their advice is ...READ MORE »

Posted in Uncategorized |
  • Who we are
  • Support & Resources
    • Articles, Publications, and Books
  • Get involved
  • Blog
  • Home
  • Privacy Policy
  • Join our community!

© Copyright 2007-2023. The Moebius Syndrome Foundation. All rights reserved.

This is the official website of the Moebius Syndrome Foundation, a 501 (c) 3 organization. The Moebius Syndrome Foundation and its Board does not diagnose Moebius syndrome in individuals nor does it endorse particular medical professionals, treatments, products or services. The Moebius Syndrome Foundation has trademarked its logo and tagline. Expressed written consent is required for use.

DC Web design by the MightyLittleWebShop.com