The Moebius Syndrome Foundation hosts a conference every two years. These unique events allow individuals with Moebius syndrome and their families to connect, build friendships, and gather valuable information about Moebius syndrome.
Below you will find presentations and information from our 2022 conference.
Scientific Advisory Board Q&A Panel, presented by Moebius Syndrome Foundation Scientific Advisory Board Members
Genetic Research into Moebius Syndrome, presented by Elizabeth Engle, M.D., Ethilyn Jabs, M.D., Irini Manoli, M.D., Bryn Webb, M.D.
Dental Concerns for People with Moebius, presented by Greg Osborne, DDS (Note: Includes presentation and accompanying video)
Introduction to Sleep Disorders and Treatments, presented by Greg Osborne, DDS
Psychological Well-Being of Patients, presented by Kathleen Bogart, Ph.D.
Coping Skills for Everyday Life for Teens and Adults, presented by Rhonda Robert, Ph.D.
Disability Won’t Stop Your Ability To Perform, presented by Madhuri Gunti
Finding Your Passion and Purpose: Key Strategies to Rocking Your Life & Career, presented by Zoe Cross
Standing Up for Yourself: Confidence in Teens & Young Adults, presented by Tara Lewis, Ph.D.
Start Where You Are: How to Identify Your Major and Career Options, presented by Tara Lewis, Ph.D.
Where To Go and What To Do When You Have Mental Health Concerns, presented by Kathleen Bogart, Ph.D.
Back to School IEP/504 Tips and Resources, presented by Destiny Bachman and Leah Richter Maldonado
What I Wish My Parents Had Known: Young Adults With Moebius Talk to Parents of Children With Moebius, presented by Jessica Maher, Austin Halls, and Alli Johnson
Neuromuscular Retraining for Facial Paralysis, presented by Jackie Diels, OT
Speech and Feeding Issues, presented by Renee Roy-Hill, MS, CCP-SLP
Surviving the First Year, presented by Katherine Lockwood
Overcoming Stress and Achieving Relaxation Through Music and Meditation, presented by Jon Fisher
View photos taken by Rick Guidotti with Positive Exposure
*Photos are free to download, or prints are available for purchase.
There was a fun photo booth at the 2022 conference! Attendees can now download their photobooth pictures for free, or purchase a print here.
View the Moebius Syndrome Foundation’s Flickr account to see conference photos submitted by attendees.
