SAVE THE DATE! July 15-17, 2022
The 2022 Moebius Syndrome Foundation Conference will be held in Atlanta, Georgia!
The Moebius Syndrome Foundation, the nation’s largest organization dedicated to providing information and support to individuals with Moebius syndrome, is hosting its biennial national conference on July 15-17, 2022 at the Atlanta Airport Marriott in Atlanta, Georgia. The purpose of the conference is to bring families and individuals affected by Moebius syndrome together for education, research, and socialization opportunities.
There will be a separate Scientific Research Symposium held at the same location on Thursday, July 14, 2022. This is by invitation only for researchers and scientists that have an interest in the Moebius community. For more information about this special session, please contact us.
Please check this page often for updates.
Experience the perfect blend of style and service at Atlanta Airport Marriott. Located on 14 scenic acres near Hartsfield-Jackson Atlanta International Airport, this contemporary hotel provides a relaxing city oasis and easy access to the airport with 24-hour complimentary shuttle service. Unwind in stylish, soundproof hotel rooms with deluxe amenities like plush bedding, marble bathrooms, Smart TVs, balconies and pool views. Stay fit in the 24/7 gym, or go for a swim in a unique indoor/outdoor pool. Explore the city of Atlanta – Atlanta Motor Speedway, Cellairis Amphitheatre at Lakewood and Porsche Experience Center Atlanta are all located near the hotel. The Zoo Atlanta, Six Flags over Atlanta, Aquarium, and downtown Atlanta attractions are all within a 10 – 18 minute drive from the hotel. Attendees of the Moebius Syndrome Foundation Conference are eligible to receive a discounted sleeping room rate. A link to receive a discounted room rate will be available on August 1, 2022.
PLAN YOUR VACATION
Start planning your Atlanta itinerary! Atlanta is a great place to visit and for those wanting to extend their stay and make this an even greater vacation, we encourage you to explore the great options put together by the city of Atlanta. Also, check out this brochure on 50 Fun Things to See and Do in Atlanta. Coming from a country outside the U.S.? Here is an International Visitor’s Guide that might be useful.
Information about registration and further conference details will be available in January 2022.
Speaker submissions now being accepted through November 1, 2021!
If you are planning to attend the 2022 Atlanta Conference and would be interested in being considered as a presenter, please complete this submission form.
WHY SHOULD YOU GO?
Why should YOU go to conference? Listen to what these people have to say!
“To all first-time conference-goers who have never been to a Moebius conference before, my thoughts are this: If you have not experienced it, GO. Go for the chance to meet so many other people like yourself who have similarities (and differences), for the chance to have unique conversations with kindred people, their families and the chance to create a network. Go for the fun of it, if you’re extroverted, to perform in the Talent Show or just to get your picture taken by Rick Giudotti, among hundreds of other community members. If you’re more introverted, go for the multitude of informational sessions, like I first did. I wanted to get to know more about what it means to have Moebius, from a scientific perspective. When you first arrive you’ll feel like you’ve entered a ‘culture shock’ environment but when you leave you’ll know you made the right choice because over the period of the conference you’ll have made friends and advocated for yourself in a way that might even surprise yourself. I certainly did and I keep going back to reconnect with those friends and to be a role model for all the younger generation who have the same disability that I have. These friends and people aren’t strangers anymore to me; they are a family.” – Jon Fisher, Colorado, Moebius Ambassador
“The Moebius Conference is an incredible opportunity for individuals and families to come together to share common experiences and learn from one another! There is so much information specific to our community, which was helpful especially as a new parent looking for answers. But my favorite is always getting to connect with other parents and to see connections made between our children. And my daughters’ favorite part is the talent show!” -Brittni Jones, Oregon
“In 2014, I attended my first Moebius Syndrome Conference in Washington D.C. It was a life changing experience in so many ways! The MSF conference has a little something for everyone – informational sessions, consultations with professional who are familiar with Moebius, opportunities to talk to individuals just like you, and social events that will introduce you to new friends. You won’t regret your decision to attend! I look forward to seeing you soon” – Steven Maldonado, Member of the MSF Board of Directors
Calling all Volunteers! We need you in Atlanta!
Would you like to be a volunteer while attending? Please email interest to firstname.lastname@example.org.