Members of the Moebius community met in Minneapolis, MN on July 20-23, 2023 for the Moebius Syndrome Foundation national conference. The Moebius Syndrome Foundation conferences are the largest gatherings for the Moebius community in the world. This conference welcomes medical professionals, caregivers, and individuals with Moebius syndrome and similar facial differences for three days of breakout sessions specific to Moebius syndrome, as well as complimentary medical consultations, and fun social events.
State of the Foundation, presented by Jenny Whitman, Executive Director, Moebius Syndrome Foundation
Genetic Research into Moebius Syndrome, presented by Bryn Webb, M.D., Elizabeth Engle, M.D., and Ethylin Wang Jabs, M.D.
Scientific Advisory Board Q&A Panel, presented by Moebius Syndrome Foundation Scientific Advisory Board Members
Identifying Sources of Aspiration, presented by Arthur A. Beisang III, M.D.
Moebius Syndrome Dental Issues and Considerations, presented by Mackensie McBeain, D.D.S.
Orthopedic Manifestations with Moebius Syndrome, presented by Dr. Philip K. McClure
Driving With Moebius Syndrome Panel, presented by Steven Maldonado, KiOwana Phillips, Khaleb Phillips, and David Hunter M.D., Ph.D.
Moderated by Monica Woodall
Building Self-Confidence Through Self-Compassion, presented by Tara N. Lewis, Ph.D.
Communication Skills for Job Searching and the Workplace, presented by Tara N. Lewis, Ph.D.
Disclosing Facial Differences, presented by Kathleen Bogart, Ph.D.
Equipping Families to Support the Employment Process, presented by Sean Roy
The Power of Perspective/Perception, presented by Austin Halls
Relaxation Techniques, presented by Jon Fisher
Screen Media, Addiction, and Health, presented by Rhonda Robert, Ph.D.
Our Parenting Journey – Parents of Adults With Moebius Syndrome, presented by Jan Fisher, Mary Kay Mendenhall, Angela Coakley, and David Baldridge
Adventure Is Out There: Navigating Travel With Kids With Disabilities presented by Dani Doughty
Prepare Wisely: Estate Strategy Essentials, presented by Leif Erickson, RICP, BFA
Supporting Children and Teens with Moebius Syndrome, Autism, & Sensory Processing Needs, presented by Rebekah Hudock, Ph.D., LP, NCSP