Members of the Moebius community met in Minneapolis, MN on July 20-23, 2023 for the Moebius Syndrome Foundation national conference. The Moebius Syndrome Foundation conferences are the largest gatherings for the Moebius community in the world. This conference welcomes medical professionals, caregivers, and individuals with Moebius syndrome and similar facial differences for three days of breakout sessions specific to Moebius syndrome, as well as complimentary medical consultations, and fun social events.
State of the Foundation, presented by Jenny Whitman, Executive Director, Moebius Syndrome Foundation
Genetic Research into Moebius Syndrome, presented by Bryn Webb, M.D., Elizabeth Engle, M.D., and Ethylin Wang Jabs, M.D.
Scientific Advisory Board Q&A Panel, presented by Moebius Syndrome Foundation Scientific Advisory Board Members
Identifying Sources of Aspiration, presented by Arthur A. Beisang III, M.D.
Neuromuscular Retraining For Facial Paralysis, presented by Jackie Diels, OT
Driving With Moebius Syndrome Panel, presented by Steven Maldonado, KiOwana Phillips, Khaleb Phillips, and David Hunter M.D., Ph.D.
Moderated by Monica Woodall
Mental Health First Aid, presented by Letitia Jennings-Holmes
Our Parenting Journey – Parents of Adults With Moebius Syndrome, presented by Jan Fisher, Mary Kay Mendenhall, Angela Coakley, and David Baldridge