2025 Conference Information - Moebius Syndrome Foundation

Moebius Syndrome Foundation

2025 Moebius Syndrome Conference

The Moebius Syndrome Foundation 2025 Conference will be located in beautiful downtown Salt Lake City, Utah and will be held from July 24 – 27, 2025. The conference venue is walking distance to a variety of restaurants, shopping, sites, and entertainment. The new Salt Lake City airport is a short 10 minute taxi ride from the hotel, and the TRAX light rail between the airport and downtown has a wheelchair accessible station located 1.5 blocks from the hotel. The Salt Lake City conference will offer an ease of access, walkability, downtown location, variety of nearby activities, and beautiful natural environment that all conference attendees can enjoy!

Location

Sheraton Salt Lake City Hotel

150 W. 500 South

Salt Lake City, Utah

Phone: 801-401-2000

Hotel website (Not for discounted guest room reservations)

Gallery

Frequently Asked Questions

Registration

Registration for the 2025 conference will open in early 2025. Check back for more details.

Airport and Transportation

The Salt Lake City International Airport is the closest airport to the conference location.

The new Salt Lake City airport is a short 10 minute taxi ride from the hotel, and the TRAX light rail between the airport and downtown has a wheelchair accessible station located 1.5 blocks from the hotel.

Parking Information

On-site parking is available. For conference attendees, the overnight rate is $10 per night and the day parking rate is $5 per day.

Learn More About Salt Lake City

Conference Scholarships

Scholarship applications will open in early 2025.

The Moebius Syndrome Foundation will provide scholarships to a limited number of first-time attendees with a financial need. Additional financial need scholarships will be available to a limited number of individuals and families.

We highly recommend applying as soon as possible because scholarships typically go quickly.

A group of women, most with Moebius syndrome, sit together in a hotel lounge area. Their arms are draped around each other.

Medical Evaluations

Complementary medical evaluations will be available at the conference. Please check back for more information on how to register and what medical evaluations will be available.

Why should YOU attend the conference?

See what these attendees at the 2022 conference shared about their experience.

“The very best part of this conference was being able to connect with our people! Watching the Moebius family share joy and pain, hugs, smiles from their hearts, and a level of acceptance unknown in their everyday lives was priceless and unforgettable.”
“This past weekend, we spent every second, every minute, and every hour with NO judgment, NO stares, NO uncomfortableness. Every amazing person we encountered just GOT it. They understood the struggles, the setbacks, and the confusion associated with this syndrome, and they listened and shared in every moment together. They also shared their triumphs and victories, and we saw how talented each person is.”
“The Atlanta Moebius Syndrome Conference 2022 is in the books. It was a great time to see friends, make new ones, and watch our girl live her best life. We are grateful for these experiences and walk away a little wiser and humbled by the depth of humanity in this amazing community.”
“I could go on and on about how this extraordinary convention has filled a void I didn’t even know was there. It doesn’t matter how many conferences we attend, there is always something new to gain and learn. We all truly get each other. There is no judgment, just genuine love, unlimited support, and true camaraderie.”