We are pleased to announce the awarding of the 2025 Community Empowerment Grant to musician and advocate Austin Halls. Halls plans to release a new album, Disabili-tea, in early 2026. It’s a soundtrack of resilience and joy while shining a light on Moebius syndrome and disability pride. Through these songs, Halls hopes “to break stereotypes, spark...

The Fall 2025 edition of the Moebius Syndrome Foundation bi-annual newsletter is now available. Learn more: https://moebiussyndrome.org/newsletter/ — Image description: The 2025 Fall newsletter, featuring the headline The Faces Moving Us Forward with a black and white collection of photos of people with Moebius syndrome, of all ages.

The interest for the University of Wisconsin–Madison study on Healthcare Experiences with Moebius syndrome has been phenomenal, but we are in need of a few more voices. The study is currently seeking participants from the following groups: Adults with Moebius syndrome ages 18-30 Adults with Moebius syndrome ages 65+ Adults with Moebius syndrome and parents of children...

Researchers at Oregon State University are conducting a study on facial appearance and injustice awareness. Are you: Someone with a condition, illness or injury that affects the way your face looks (ie cleft lip, facial paralysis, birthmark) 18 years or older Able to communicate in English If so, researchers from Oregon State University want to...

The Moebius Syndrome Foundation joined 14 other facial difference organizations, led by the American Cleft Palate Craniofacial Association (ACPA), in an open letter to the TV and film industry in the December 10 issue of Variety magazine. The letter appears on page 7. To view the letter online: December 10, Variety Weekly Digital Edition Or if you...