This hour-long special virtual event will bring together moms from across our community for an open, honest conversation about the journey of raising a child with Moebius syndrome. We’ll hear from three panelists – a mom of an adult, a teen, and an elementary-aged child – sharing their experiences, insights, and perspectives at different stages....

“Our house is located in a small village in Vietnam, where the climate is tropical and the locals are friendly. On a rainy day in August 2019 at a small hospital, our family welcomed a little angel. She was pretty, small and adorable little girl. The arrival of a new member of our family filled...

"My son Martin has Moebius, athroygroposis, and scoliosis, as well as other problems. He is now 30 years old and dad to Alfie, age 8, and AJ, age 7. He hates being labeled and says he was born this way—it is all he knows and likes to get on with it." Pauline—Mother of son with...

"My name is Kiowana and I am a Sergeant First Class in the United States Army. My husband and I have a 10 year old son named Khaleb. He was diagnosed with Moebius syndrome at two months old. In 2008, Khaleb was trached for 3 years due to a choking incident in daycare."