New! This video features Rebecca Maher and her daughter, Jessica, discussing their experience with Jessica’s diagnosis with Moebius syndrome and how discovering the Moebius Syndrome Foundation changed their lives.
Postive Exposure created this beautiful video at a previous Moebius Syndrome Foundation conference. Meet some of the individuals and families in the Moebius community as they explain more about what Moebius syndrome is and how it affects them.
This is the official website of the Moebius Syndrome Foundation, a 501 (c) 3 organization. The Moebius Syndrome Foundation and its Board does not diagnose Moebius syndrome in individuals nor does it endorse particular medical professionals, treatments, products or services. The Moebius Syndrome Foundation has trademarked its logo and tagline. Expressed written consent is required for use.