Roland Bienvenu has extensive experience in the Human Resources field, and has many great tips for people with Moebius who are going through the job searching / interviewing process. Roland has a Bachelor’s degree in Business Administration, a Master’s in Public Administration, and has spent a total of 30 years in the Human Resources field....

Apply for a Community Empowerment Grant! The application will be open through October 30, 2026. Apply Now! Community Empowerment Grant  

Introducing the Redesigned Moebius Connections There is something special about talking with someone who understands your experience without needing it explained. For many people in the Moebius syndrome community, that kind of connection can be hard to find close to home. Moebius Connections is here to help close that distance. Building on the mentorship and...

Emma Morton, a 2026 Moebius Syndrome Foundation Educational Scholarship recipient, said she is truly grateful for the Moebius community. Emma is majoring in English Language and Literature, and hopes to graduate in 2030. She aspires to become an Author, Editor, and Publisher. Emma had been enrolled in the highest level English class offered by her...

Trial by Fire: Moebius Syndrome, Social Work, & Law School ‘Can she shut up? She’s annoying.” “Why do you sound like that?” “You sound stupid.” Standing in front of three mock judges for 1L moot court at the University of Texas School of Law, these words, and the feelings they evoked, were unavoidable, even as...

What is Moebius Connect? Moebius Connect is a free mobile app from the Moebius Syndrome Foundation, built to help individuals with Moebius syndrome, their families, and caregivers stay connected with resources and information on the go. Learn more here! Inside the app, you can access community resources, find ways to connect with others, and stay...

Thorben Wulff has not wanted Moebius syndrome to completely define who he is. He’s not “the guy with Moebius.” He’s Thorben. Thorben works as an Executive Assistant to the CEO and Head of Finance and Accounting in a mid-sized, family-owned food trading company in Germany. The company imports fine foods, especially cheese and charcuterie, from...

Written by: Kari Storm

Brianna Kelley, a recipient of the 2026 MSF educational scholarship, is pursuing her passion by studying and researching something near and dear to her heart – audiology. She is working towards a PhD in Communication Sciences and Disorders. Brianna teaches undergraduate students a variety of audiology related classes, and mentors undergraduates who are interested in...

We are thrilled to announce the 2026 Moebius Syndrome Foundation Educational Scholarship recipients. These deserving students have worked hard to have a bright future, and we are grateful that we can reward them by making their educations more affordable. Congratulations to the following awardees: Joshua Crawford, Temple University “It is a great honor for me...