Moe is headed back to school with kids in the Moebius community! As the new mascot for the Moebius Syndrome Foundation, Moe creates a connection with children as they learn about Moebius syndrome. Moe explains that a child in a kid’s class may have Moebius syndrome, and they might look or sound different than others....

Join us for the first annual Moves for Moebius on the weekend of Sept. 9 and 10! We will spread awareness about Moebius syndrome and raise funds for the Moebius Syndrome Foundation through fun run/walk/roll events hosted in communities across the U.S. Host a Moves for Moebius event in your community! Email events@moebiussyndrome.org by August...

We are excited to announce the arrival of our new resource, A Guide for Healthcare Providers. This booklet is designed to help healthcare providers get a brief overview of Moebius syndrome and guidance on the types of specialist care a patient may require. The guide includes sections on eyes, speech and feeding, smile and blink...

This month, the Moebius Syndrome Foundation is highlighting the many ways we offer support and resources to the Moebius community. We are asking for your help to make it possible for us to continue our important work. Here is some of the important work we’ve accomplished because of supporters like you… Invested over $1.4 million...

The Moebius Syndrome Foundation is thrilled to announce that research funded by the Foundation has been published in the prestigious Nature Genetics research journal. The genetics researchers from Boston Children’s Hospital, the National Institutes of Health, and the Icahn School of Medicine at Mount Sinai partnered with the Moebius Syndrome Foundation with the aim to...

You’re in the right place! The Moebius Syndrome Foundation has launched a new website. We greatly thank our volunteers for the time and effort it took to design, build, and create the website. More than 250 volunteer hours were spent on the creation of the new website. The Moebius Syndrome Foundation would like to thank...

The Moebius Syndrome Foundation is pleased to announce a new Medical Travel Reimbursement Program to assist U.S. families and individuals with Moebius syndrome. Traveling to medical appointments or procedures can be costly, and this program allows the reimbursement of up to $2,000 to help offset the financial burden. Thanks to our supporters, members who reside...

The Moebius Syndrome Foundation funded research into when and how someone should disclose a facial difference. The research, led by Dr. Kathleen Bogart, revealed that most individuals with facial differences opted to disclose their condition to others. More than half of participants disclosed their facial difference on the job. Personal disclosure resulted in more positive...

We are thrilled to announce the 2023 Moebius Syndrome Foundation Educational Scholarship recipients formally! These deserving students all have a bright future, and we are grateful that we could award them for their hard work. Because of extremely generous donors, we were able to increase our scholarship awards to eight students. Thank you! Congratulations to...

Please join us in welcoming Zayne Herron to the Moebius Syndrome Foundation staff as our new Social Media Assistant! Zayne is a member of the Moebius syndrome community. Her first conference was when she was 13 years old. She writes, “I am so thrilled and honored to be helping out and giving back to the...