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New MSF Funded Genetics Research Findings
The Moebius Syndrome Foundation is thrilled to announce that research funded by the Foundation has been published in the prestigious Nature Genetics research journal. The genetics researchers from Boston Children’s Hospital, the National Institutes of Health, and the Icahn School of Medicine at Mount Sinai partnered with the Moebius Syndrome Foundation with the aim to...
Images of the old website and the new website with the text "We have a new look!"
You’re in the right place! The Moebius Syndrome Foundation has launched a new website. We greatly thank our volunteers for the time and effort it took to design, build, and create the website. More than 250 volunteer hours were spent on the creation of the new website. The Moebius Syndrome Foundation would like to thank...
Medical Travel Reimbursement Now Available
The Moebius Syndrome Foundation is pleased to announce a new Medical Travel Reimbursement Program to assist U.S. families and individuals with Moebius syndrome. Traveling to medical appointments or procedures can be costly, and this program allows the reimbursement of up to $2,000 to help offset the financial burden. Thanks to our supporters, members who reside...
When to disclose facial differences
The Moebius Syndrome Foundation funded research into when and how someone should disclose a facial difference. The research, led by Dr. Kathleen Bogart, revealed that most individuals with facial differences opted to disclose their condition to others. More than half of participants disclosed their facial difference on the job. Personal disclosure resulted in more positive...
2023 Educational Scholarship Recipients photos, names, and degrees
We are thrilled to announce the 2023 Moebius Syndrome Foundation Educational Scholarship recipients formally! These deserving students all have a bright future, and we are grateful that we could award them for their hard work. Because of extremely generous donors, we were able to increase our scholarship awards to eight students. Thank you! Congratulations to...
Welcome to the team! Zayne Herron, Social Media Assistant. Zayne is a young woman with Moebius syndrome.
Please join us in welcoming Zayne Herron to the Moebius Syndrome Foundation staff as our new Social Media Assistant! Zayne is a member of the Moebius syndrome community. Her first conference was when she was 13 years old. She writes, “I am so thrilled and honored to be helping out and giving back to the...
Conference Registration Is Open July 20-23, 2023. MSF Conference Logo - Growing Stronger Together, with a tree in a circle
Registration is open for the Moebius Syndrome Foundation 2023 Conference on July 20-23, 2023 in Minneapolis, MN. This year’s conference features 56 breakout sessions across 8 tracks – including a new Parents Track. The conference also includes 7 social events and an optional excursion. The conference brings together the Moebius syndrome community and is a...
ACPA, CCA, FIE, myFace, and NORD logos appear on a page thanking them for participating in the 2023 Kindness Is Everything Campaign
The Moebius Syndrome Foundation, American Cleft Palate Craniofacial Association, Children’s Craniofacial Association, Face Equality International, myFace, the Kindness is Everything team, and other organizations worldwide will be raising awareness and celebrating the people and families living with Moebius syndrome and similar craniofacial conditions with a Kindness is Everything campaign from December through January 24, 2023. To...
The Moebius Syndrome Foundation is currently conducting research into sleeping disorders, as well as a psychological study about the experiences of informing people about a facial difference. We invite the Moebius community to help make these studies successful by participating in online surveys for each topic. For more information, please review the following flyers: Facial...
The Moebius Syndrome Foundation hosted its 15th national conference and 8th Research Symposium on July 14-17, 2022, at the Atlanta Airport Marriott located in Atlanta, Georgia. The event attracted over 300 attendees worldwide, over 100 of whom have Moebius syndrome. The long weekend was packed with educational and entertaining breakout sessions, free research and medical...
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