“My granddaughter Beau was born on 26/09/2020. We live in Ireland and very little is known about Moebius syndrome here. As a result, we are having great difficulty with our doctors understanding Beau. She is a funny baby with lots of personality but because the doctors can’t read her, due to a lack of facial expressions, they think she doesn’t understand a lot. It can be quite annoying at times! Beau was also born with a club foot and has a trach due to her jaw being small (micrognathia); however, she is the strongest little girl I know. She has made me so proud in so many ways. We love her to the moon and back.”