Moebius Syndrome Foundation

Foundation Leadership

The Moebius Syndrome Foundation has two leadership groups: the Board of Directors and the Scientific Advisory Board. The Foundation also employs a small staff.

Jenny Whitman is Executive Director and Jacob Licht is President of the Board of Directors.

For more information on the Scientific Advisory board, please click here.

Executive Director

Jenny Whitman serves as the main point of contact for the Moebius Syndrome Foundation.

You can reach her by phone at +1 (844) MOEBIUS x.703 or by email:

Board of Directors

The Board of Directors is a working board, meaning all board members are expected to help the MSF fulfill its mission. The board helps organize conferences, create resources, connects the community, and is involved in all other elements of the Moebius Syndrome Foundation.



The Moebius Syndrome Foundation employs a small staff that assists in conference planning, content creation, and administrative needs.