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Talking to your child about Moebius syndrome early on in their life helps build self-confidence and self-acceptance. It can be challenging to do this in a manner that they can understand but books are a great way to spark these early conversations.
We also encourage parents of typical children to read books about disability. Spending time reading and discussing disability helps lower stigma and discrimination against people who are different. You can build allies for the facial differences community by reading at home!
Children with limited vision can receive books from Seedlings, a non-profit that provides free and low-cost braille books for children.
Learn MoreThe Moebius Syndrome Foundation has selected children’s book that are naturally inclusive of children with facial differences and/or disabilities. Please check out the selections below to start a book club in your area!
Deadpan by Harold Eppley (recommended for youth ages 12-16)
My Extraordinary Face: A Celebration of Differences by Marissa Suchyla, MD, PhD and Samir Mardini, MD
I Walk With Vanessa by Kerascoët
Come Over to My House by Eliza Hull and Sally Rippin
Hiya Moriah by Victoria Nelson
All the Way to the Top: How One Girl’s fight for Americans with Disabilities Changed Everything by Annette Bay Pimentel and Foreward by Jennifer Keelan-Chaffins
Fighting for YES! The Story of Disability Rights Activist Judith Heumann by Maryann Cocca-Leffler and Afterward by Judith Heumann
So Much More to Helen! The Passions and Pursuits of Helen Keller by Meeg Pincus
The ABCs of Inclusion: A disability inclusion book for kids by Beth Leipholtz
I Talk Like a River by Jordan Scott
Stompin’ at the Savoy: How Chick Webb Became the King of Drums by Moira Rose Donohue
Why Me, Mama? A Children’s Book About the Disability Experience by Katherine M. Lockwood
Porque mi Mama? Un Libro Infantil Sobre la Experiencia de la Discapacidad by Katherine M. Lockwood
Be Kind by Pat Zietlow Miller
When Charley Met Emma by Amy Webb
The Color Monster by Anna Llenas
I Love My Body Because by Shelly Anand and Nomi Ellenson
Spike: The Penguin With Rainbow Hair by Sarah Cullen and Carmen Ellis
Book reading by Victoria Nelson, author of Hiya Moriah
Book reading by Katie Lockwood, author of Why Me, Mama?
I Am, You Are: Let’s Talk About Disability, Individuality and Empowerment
By Ashley Harris Whaley
Ladybird, 2024
The founder of Disability Reframed describes differences, disabilities, diversity, ableism in this book for older children. The book includes prompts and questions for discussion.
Wonderfully Wired Brains: An Introduction to the World of Neurodiversity
By Louise Gooding
DK Children, 2023
This picture book for older children explains how brains work and presents different diagnoses in a straightforward way.
By Katherine Lockwood
Acorn Cottage Press, 2022
Written by a mother of a child with Moebius syndrome, this picture book explores all the multifaceted aspects of Moebius syndrome’s clinical presentation.
By Anna Llenas
Little, Brown Books for Young Readers, 2018
A picture book that describes emotion without relying on facial expressions. Different color monsters explain how they feel when they have different emotions.
By RJ Palacio
Knopf Books for Young Readers, 2017
The picture book companion to Wonder.
By Ann Martin
Feiwel & Friends, 2014
A story about a girl on the Autism spectrum, her parents, and her dog lost in a storm. For older children, ages 9 – 12.
By Cece Bell
Harry N. Abrams, 2014
The target audience is ages 8 – 12, but this graphic novel is perfect for children and adults interested in reading about a girl who is hearing impaired. It is heartfelt, humorous, and based on the author’s experiences as a child.
By Nancy Carlson
Gillete Children’s Specialty Healthcare, 2014
This picture book is for ages 3 – 8 and is about children encountering people with disabilities or complex medical conditions. The flipbook can be read online or the book can be ordered at https://www.gillettechildrens.org/giving/support-curepity/its-okay-to-ask/.
By RJ Palacio
Random House, 2012
This chapter book describes the phenomenal story of a fictional boy with a craniofacial condition. This New York Times best-selling book has also been adapted into a movie. Companion books include: 365 Days of Wonder and Auggie and Me.
In Your Face: The Facts About Your Features
by Donna M. Jackson
Penguin Young Readers, 2004
For ages 9 and up, facial features and cultural differences are explained. There is a chapter on Moebius syndrome.
Smile for Me
By Linda Lawrance
This is a children’s book about Moebius syndrome written by a mother in Australia. For more information, contact lindaglawrance@mail.com.