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Spring Newsletter Now Available
Our Spring Newsletter is now available to read and download! Check out the latest community news, including an interview with Dr. Kathleen Bogart on interviewing with facial differences. The newsletter also includes the latest research updates and letters from our board leaders. The Moebius Syndrome News is published twice a year. Articles, photographs, suggestions, questions, and...
A purple spiral notebook with the words “Medical Information Organizer” on the front. Text: Now available: Medical Binder Template. Keep track of important medical information like surgical history, specialists, and medication schedules. Moebius Syndrome Foundation logo.
We are excited to release our new medical binder printable! Keeping track of you or your child’s medical history can be a complex process. This printable includes places to record upcoming appointments, past surgeries, current medications, and a summary of medical history. When you’re at a doctor’s office, you’ll have all of the important information...
REQUEST FOR APPLICATIONS: Grant Proposal to Study Moebius Syndrome for New Investigators The Moebius Syndrome Foundation Grant Program is pleased to provide seed-money grants to qualified investigators for scientific and/or clinical research on Moebius syndrome.  This year, the Moebius Syndrome Foundation is actively seeking applications from new investigators who are passionate about advancing the understanding...
Back to School With Moe, the official MSF mascot - a Dalmatian with purple spots
Moe is headed back to school with kids in the Moebius community! As the new mascot for the Moebius Syndrome Foundation, Moe creates a connection with children as they learn about Moebius syndrome. Moe explains that a child in a kid’s class may have Moebius syndrome, and they might look or sound different than others....
Help us make a difference for Moebius. Making A Difference for Moebius logo
This month, the Moebius Syndrome Foundation is highlighting the many ways we offer support and resources to the Moebius community. We are asking for your help to make it possible for us to continue our important work. Here is some of the important work we’ve accomplished because of supporters like you… Invested over $1.4 million...
The Moebius Syndrome Foundation regretfully announces that its 14th national conference and scientific research symposium scheduled to be held in Minneapolis, Minnesota on July 22-25, 2021, is cancelled. Please read here for more information.
Living with Facial Weakness?  The NIH wants to hear from you. The research team aims to learn people’s views on how facial weakness affects or does not affect their everyday lives. The data will be used to understand the experiences of adults and adolescents from their own perspective. The survey takes approximately 20 minutes to...
The Moebius Syndrome Foundation has awarded three young people with the Post-Secondary Educational Scholarships. We are pleased to announce that those awarded with $2,000 scholarships toward their college tuition are Brianna Kelley, Mike Gonzalez and Dominque Piotrowski. Congratulations!!   Brianna Kelley of Lawrenceville, GA, will attend the University of Iowa where she will pursue her...
Join the Moebius Syndrome Foundation for its inaugural Webinar presentation. We’re Talkin’ Moebius! For the first presentation, we are honored to host Dr. Rhonda Robert, P.h.D., Chief of Behavioral Pediatrics and professor of clinical psychology at The Children’s Cancer Hospital, University of Texas MD Anderson Cancer Center. She will be discussing Psychological Well-Being and Moebius...
The Moebius Syndrome Foundation is excited to announce the premiere of the FRAME video, produced by Rick Guidotti and his non-profit organization, Positive Exposure! FRAME is a web-based educational library and resource created by Positive Exposure that changes how medical information is presented to health care professionals in training, clinicians, families and communities. Additionally, FRAME can...
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