Introducing the Redesigned Moebius Connections There is something special about talking with someone who understands your experience without needing it explained. For many people in the Moebius syndrome community, that kind of connection can be hard to find close to home. Moebius Connections is here to help close that distance. Building on the mentorship and...
What is Moebius Connect? Moebius Connect is a free mobile app from the Moebius Syndrome Foundation, built to help individuals with Moebius syndrome, their families, and caregivers stay connected with resources and information on the go. Learn more here! Inside the app, you can access community resources, find ways to connect with others, and stay...
We are thrilled to announce the 2026 Moebius Syndrome Foundation Educational Scholarship recipients. These deserving students have worked hard to have a bright future, and we are grateful that we can reward them by making their educations more affordable. Congratulations to the following awardees: Joshua Crawford, Temple University “It is a great honor for me...
This hour-long special virtual event will bring together moms from across our community for an open, honest conversation about the journey of raising a child with Moebius syndrome. We’ll hear from three panelists – a mom of an adult, a teen, and an elementary-aged child – sharing their experiences, insights, and perspectives at different stages....
The Moebius Syndrome Foundation joined 14 other facial difference organizations, led by the American Cleft Palate Craniofacial Association (ACPA), in an open letter to the TV and film industry in the December 10 issue of Variety magazine. The letter appears on page 7. To view the letter online: December 10, Variety Weekly Digital Edition Or if you...
Do you have a great idea that you think would benefit the Moebius community? Apply for our Community Empowerment Grant! This annual grant opportunity is designed to support people in the Moebius community who have ideas for projects that would help raise awareness about Moebius syndrome, or would provide support/resources for people living with Moebius...
The 2024 Moves for Moebius events were a resounding success! Our regional coordinators worked hard to offer enjoyable and inclusive events for all, and 110 people attended the events! More than $14,000 was raised, all of which will go toward critical programming, scholarships funds, and advocacy events supported by the Moebius Syndrome Foundation. A heartfelt...
The Fall 2024 edition of Moebius Syndrome News is now available! You can read it here or on our Newsletters page. If you would like to receive the Moebius Syndrome News in the mail as a printed edition, you can subscribe to our newsletter by joining our community.
Our Spring Newsletter is now available to read and download! Check out the latest community news, including an interview with Dr. Kathleen Bogart on interviewing with facial differences. The newsletter also includes the latest research updates and letters from our board leaders. The Moebius Syndrome News is published twice a year. Articles, photographs, suggestions, questions, and...
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