The summer is officially coming to an end. It’s Back to School time! As you prepare your children for a new classroom and new routine, you may consider sending a letter to their new teacher and/or classroom. Many parents find this to be a helpful tool in educating the class about Moebius syndrome. Click here to read the letter. You can download a copy in Microsoft Word so you can personalize the letter.  

It has been a busy couple of months since I began as the Executive Director for the Moebius Syndrome Foundation. I have had the opportunity to talk with amazing people — and I can’t wait to meet you all in Long Beach next year! Allow me to update you on some of the items I have been working on this summer. Just last month, the foundation’s board of directors met in Long Beach, at the site of the 2016 conference hotel. We ...READ MORE »