The Moebius Syndrome Foundation is thrilled to announce that research funded by the Foundation has been published in the prestigious Nature Genetics research journal. The genetics researchers from Boston Children’s Hospital, the National Institutes of Health, and the Icahn School of Medicine at Mount Sinai partnered with the Moebius Syndrome Foundation with the aim to...
The Moebius Syndrome Foundation funded research into when and how someone should disclose a facial difference. The research, led by Dr. Kathleen Bogart, revealed that most individuals with facial differences opted to disclose their condition to others. More than half of participants disclosed their facial difference on the job. Personal disclosure resulted in more positive...
The Moebius Syndrome Foundation is currently conducting research into sleeping disorders, as well as a psychological study about the experiences of informing people about a facial difference. We invite the Moebius community to help make these studies successful by participating in online surveys for each topic. For more information, please review the following flyers: Facial...
