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Stories
“When my brother was born, he had many complications and had to face so many procedures and surgeries. But we faced it together.”
“From the outside, people saw a frail, tiny, crooked little girl. To me, on the inside, I was a strong, over-sized, energetic girl who enjoyed wearing dresses with lace and frills!”
“It wasn’t until the age of 28 that I had the confidence to face my fears and to stop covering my mouth. I felt an overwhelming sense of freedom when in public as I could now communicate with people far more easily and I was able to smile at people with my own unique smile,...
“I am not defined by my disability, nor would I ever allow myself to have that mindset. I can and will do anything I set my mind to with all of the grit, hard work, and determination that I have gained over the past several years. I am strong, I am unique, and I am...
My name is Zoe and I am 16 living in England and I have Moebius syndrome. I was born with it from birth. My parents were told when I was born that I wouldn’t be able to live normally. What I mean by that is I wouldn’t be able to go to a mainstream school...
My name is Sophia Vanessa Orozco and just like you I have Moebius syndrome. It has really been a struggle my whole life, not knowing if I fit in. I live in Los Angeles, California, on my own with 24 staff from Regional Center. My mom and dad are my biggest support system, as well...
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