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The Moebius Syndrome Foundation is pleased to announce the addition of four new members who were recently elected to its Board of Directors. Joining the Board are Destiny Bachman, Jon Fisher, Kathrn Kraus, and KiOwana Phillips. In addition, Steven Maldonado was elected to serve as Vice President. Read the full press release here.  
August 1, 2021- The Moebius Syndrome Foundation welcomes Jenny Whitman as its new Executive Director. Hired in January of 2018,  Jenny Whitman served in the role of Events and Programs Manager until August 1, 2o21 when she moved into the position of Executive Director. Her position is to help the Moebius Syndrome Foundation fulfill its...
The Moebius Syndrome Foundation, the nation’s largest organization dedicated to providing information and support to individuals with Moebius syndrome, is hosting its biennial national conference on July 15-17, 2022 at the Atlanta Airport Marriott in Atlanta, Georgia. The 8th Scientific Research Symposium will be held at the same location on July 14, 2022. The purpose...
The Moebius Syndrome Foundation regretfully announces that its 14th national conference and scientific research symposium scheduled to be held in Minneapolis, Minnesota on July 22-25, 2021, is cancelled. Please read here for more information.
We are excited to announce a new video that brings awareness to the Moebius Syndrome Foundation (MSF). We hope it reaches far and wide and helps others learn more about Moebius syndrome and how the MSF can help support families and individuals affected by it. We are so grateful for our generous donors and advocates...
  Kathleen Bogart, Ph.D., is an Associate Professor of Psychology at Oregon State University. Her research focuses on the psychosocial implications of living with disability, rare disorders, or facial differences such as Moebius syndrome. Check out this informative article she wrote about Moebius syndrome! https://www.psychologytoday.com/us/blog/disability-is-diversity/202101/7-things-understand-moebius-syndrome-awareness-day
Press Release – Moebius Syndrome Awareness Day 2021 The Many Faces Of Moebius Syndrome (www.mfoms.org), the Moebius Syndrome Foundation (www.moebiussyndrome.org), the Moebius Syndrome Research Trust (www.moebiusresearchtrust.org), the Children’s Craniofacial Association (www.ccakids.com), and Face Equality International (www.faceequalityinternational.org), are proud to announce the 11th annual Moebius Syndrome Awareness Day which will be celebrated worldwide on Sunday the...
Here is an explanation put together by Zineb Aourid, featuring Dr. Ronald Zuker, MD. This would be great to share with others not familiar with Moebius syndrome. Watch this informative video here.
Kathleen Bogart and Tara Lewis wrote a fantastic blog post for NACE (National Association of Colleges and Employers about how employers can reduce bias toward people facial paralysis, especially now since virtual interviews are the norm. We are hoping to bring more awareness to employers as it relates to hiring people with Moebius syndrome and...
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