Do you have a great idea that you think would benefit the Moebius community? Apply for our Community Empowerment Grant! This annual grant opportunity is designed to support people in the Moebius community who have ideas for projects that would help raise awareness about Moebius syndrome, or would provide support/resources for people living with Moebius...

It Takes a Village… and Ours Showed Up Big Time! The Moebius Syndrome Foundation’s 2025 Conference in Salt Lake City was a huge success, and we would like to thank the incredible group of volunteers who helped make it all happen. From the planning committee to the folks working the registration and sales tables, to...

The 2024 Moves for Moebius events were a resounding success! Our regional coordinators worked hard to offer enjoyable and inclusive events for all, and 110 people attended the events! More than $14,000 was raised, all of which will go toward critical programming, scholarships funds, and advocacy events supported by the Moebius Syndrome Foundation. A heartfelt...