- Who We Are
- About Moebius Syndrome
- Living With Moebius Syndrome
- Science & Healthcare
- Events
More than 300 members of the Moebius syndrome community gathered in Salt Lake City, UT on July 24 – 27, 2025. The conference featured a welcome reception with a magician, balloon maker, and button making. The keynote speakers were Susannah Fox, author of Rebel Health, Rick Guidotti, photographer and founder of Positive Exposure, and Steven Maldonado and Leah Richter, community members with Moebius syndrome.
Below are a selection of presentations and videos from the 2025 conference.
Scientific Advisory Board Q&A Panel, presented by Moebius Syndrome Foundation Scientific Advisory Board Members
Characterizing Moebius Syndrome – Moebius Syndrome Research Consortium, presented by Elizabeth Engle, M.D., Ethilyn Jabs, M.D., and Bryn Webb, M.D.
Patient Perspective – Living with Moebius presented by Jessica Maher
This video was presented as part of a Continuing Medical Education event held adjacent to the conference.
The following presentations are available for download and review. We thank our conference speakers for donating their times and talents towards providing information to our community.
Questions? Email events@moebiussyndrome.org for more information.
