COVID-19 Resources

 

We know the coronavirus pandemic is having a significant impact on our community.  In this time of uncertainty, we want you all to know that we are here for you and that we will get through this pandemic together.

The following resources might be helpful to the Moebius community.

HEALTH AND SAFETY

MENTAL HEALTH

We understand the importance of treating mental health in addition to physical health, as many patients are now isolated and concerned about what’s to come. Here are some resources you can share with your community when they need additional support:

CONNECT

ADVOCATE

The rare disease community voice needs to be heard in government as COVID-19 challenges threaten to impact continuity of care for rare disease patients.Advocate

RESOURCES FOR PARENTS AND CAREGIVERS

Here are some great tool kit for parents and caregivers to help guide them with conversations, activities, and resources during the COVID-19 pandemic.

Transportation Assistance

Quarantine Family Tool Kit

Parent Resources for COVID-19

Distance Learning Solutions

250 Creative Ways to Keep Your Family Sane During COVID-19 Virus

14 Ways to Celebrate Your Child’s Birthday During COVID-19

Making Health and Nutrition a Priority During the Coronavirus Pandemic

Cooking Lessons, Videos, and Recipes for Families

Music Therapy Resources

Family Games (written for family reunions, but would be great for family nights)

FINACIAL RESOURCES

Laughing at My Nightmare: COVID-19 Resource Relief

FamilesSCN2A Foundation Patient Assistance Grant Program

TailorMed: Financial Navigation Resources for COVID-19

PAN Foundation Treatment and Prevention Fund

MOEBIUS SYNDROME FOUNDATION BOARD OF DIRECTORS

 

Please submit suggestions for resources and guidelines to jenny@moebiussyndrome.org.