Moebius Syndrome Awareness Day is on January 24, 2025! This year, we embrace the theme “Celebrating 30 Years of Community” to highlight the 30-year journey of the Moebius Syndrome Foundation.

Moebius syndrome is a rare neurological condition affecting around 2-20 births per million births. It causes facial paralysis or weakness and can cause speech, feeding and respiratory difficulties, limb differences, and other symptoms. It is a congenital, non-progressive disorder that affects individuals from all walks of life. Our theme, “Celebrating 30 Years of Community,” highlights the MSF’s three decades of advocacy, education, community support, connections, and research initiatives benefiting those living with this rare condition. Read the full press release.

Help us celebrate this event all month long by submitting your memories and friendship stories to our digital scrapbook. Contribute your photos and memories by emailing us at social@moebiussyndrome.org.

Our regional coordinators are hosting in-person events across the country! Celebrate by finding an event near you.

You can also participate and support Moebius Syndrome Awareness through social media by sharing your memories using the hashtags #MSAD2025 and #MoebiusMemories.

Learn more about Moebius Syndrome Awareness Day or Moebius syndrome.