Save the date for an upcoming webinar – Understanding the Moebius Syndrome Foundation Research Registry, with Bryn Webb, M.D. and Kathy Kraus, M.D. on Tuesday, October 28, at 5 PM PDT / 8 PM EDT.

The Moebius Syndrome Foundation Research Registry is a new research tool created in partnership with the National Organization for Rare Disorders (NORD) through their IAMRARE® program. The data collected will be used by the Moebius Syndrome Foundation and supported researchers to better understand Moebius syndrome. You may be able to help us uncover new insights and information!

Dr. Webb and Dr. Kraus will explain how the research registry works, how you can participate, and will answer your questions during a live Q&A session.

Dr. Webb is a clinical geneticist and Associate Professor at the University of Wisconsin School of Medicine and Public Health, a Moebius Syndrome Foundation Scientific Advisory Board member, and the Principal Investigator on the Moebius Syndrome Foundation Research Registry.

Dr. Kraus is a retired physician who is committed to advancing research into the therapeutics and mechanisms of the Moebius spectrum, and is a member of the Moebius Syndrome Foundation Board of Directors. Dr. Kraus attended the University of Pittsburgh School of Medicine, and earned additional certifications in internal medicine, allergy, and immunology. She is a key member of the IAMRARE® initiative.

You must register for the event in advance to attend: https://bit.ly/MSFResearchRegistry. You do not need to register for the research registry in order to attend the event.

To learn more about the Moebius Syndrome Foundation Research Registry, visit: https://moebiussyndrome.org/research-registry/
To enroll in the Moebius Syndrome Foundation Research Registry registry, visit: https://moebius.iamrare.org/

Questions about the webinar? Contact events@moebiussyndrome.org. If you have questions about the research registry, please contact: registry@moebiussyndrome.org.

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Image description: On the right, headshots of Bryn Webb, M.D. and Kathy Kraus, M.D. Text: Understanding the Moebius Syndrome Foundation Research Registry. Join us for a live webinar. Join Bryn Webb, M.D. and Kathy Kraus, M.D. for an informative, interactive webinar on the Moebius Syndrome Foundation Research Registry. Learn: How it works, How you can participate, and Ask your questions during a live Q&A session. Tuesday, October 28, 5 PM PDT / 8 PM EDT. Advance Event Registration Required. Moebius Syndrome Foundation logo.