Events

Parents of Medically Complex Children Chat

The Parents of Medically Complex Children chat will be held Thursday, April 25, at 5 pm PST / 8 pm EST. This virtual gathering is open to all parents raising children with Moebius Syndrome and facing medical complexities. It's an ideal opportunity to come together, provide mutual support, exchange ideas, offer guidance, and engage in […]

Educational Scholarship Deadline

The application for educational scholarships is due on Tuesday, April 30, 2024. The 2024 Educational Scholarship program is open to individuals with Moebius syndrome planning to attend college, technical, or trade school within the next year. Applicants must be residents of the United States.  The Moebius Syndrome Foundation will award several scholarships of up to […]

Just for Moms

Join us for the next Just for Moms chat on Thursday, May 9, 2024 at 6:00 PM PST / 9:00 PM EST.  This virtual gathering is designed specifically for mothers of children with Moebius syndrome and similar conditions. It offers a welcoming and supportive environment where moms can connect, share their stories, seek advice, and […]

Regional Event: Face Equality Week Picnic, Royal Oak, MI

Join us to celebrate Face Equality Week! We will be gathering at VFW Park in Royal Oak, MI in the picnic shelter. There will be lawn games, an ADA accessible playground, and a very large sandbox. ADA accessible restrooms are located in the neighboring Salter Senior Center. RSVP by emailing Laura Berge at social@moebiussyndrome.org. Please […]

Regional Event: Moebius Friends and Family Zoo Meetup, Chicago, IL

Lincoln Park Zoo Chicago, IL, United States

Please come and join us at the Lincoln Park Zoo. There's no admission cost. In addition to getting to know each other and making new friends, we will also have a zoo scavenger hunt. Pack your picnic baskets and come ready for fun!! Exact meeting location will be announced closer to the event date. To RSVP, please use […]

Book Club: Haben – The Deafblind Woman Who Conquered Harvard Law

Attention all readers! Join us for our next book club meeting on Sunday, May 19 at 1 pm PST/4 pm EST. We will be reading Haben: The Deafblind Woman Who Conquered Harvard Law. This incredible true story follows the life of Haben Girma, the first Deafblind graduate of Harvard Law School and her amazing journey […]

Virtual Talent Show – Submission Deadline

We are ready to celebrate you! Members of the Moebius community are invited to join our Virtual Talent Show & Celebration on July 25, 2024! This family-friendly event, celebrating the Moebius Syndrome Foundation’s 30th anniversary, is open to anyone with Moebius syndrome or a similar condition worldwide. All ages and forms of talent are invited! […]

Virtual Talent Show

We are ready to celebrate you! Members of the Moebius community are invited to join our Virtual Talent Show & Celebration on July 25, 2024! This family-friendly event, celebrating the Moebius Syndrome Foundation’s 30th anniversary, is open to anyone with Moebius syndrome or a similar condition worldwide. All ages and forms of talent are invited! […]

Carnival Cruise for Adults with Moebius

Seas the Day! A Carnival Cruise for Adults with Moebius You asked, and we listened! There have been many requests for more social opportunities specifically for adults with Moebius syndrome, and the Moebius Syndrome Foundation is pleased to announce that we are planning a cruise just for you. This exclusive cruise offers a fantastic opportunity […]