The Moebius Syndrome Foundation holds events throughout the year so that families and individuals living with Moebius can connect. Every day we provide free, online networks for you to easily connect with families and individuals from across the globe. Learn more »

2021 Moebius Syndrome Foundation Virtual Events

We are pleased to announce a year of virtual events! Although we are disappointed that the in-person conference previously scheduled for Minneapolis, MN this July had to once again be postponed, we’ve refocused our efforts into making the most out of this unique opportunity we’ve been given. The Moebius Syndrome Foundation will be hosting free educational and social events throughout 2021, beginning in April and ending in December. We invite you to look at our agenda and sign up for the sessions you are interested in.

Find out more information here.

2020 Moebius Syndrome Foundation Virtual Conference

The Moebius Syndrome Foundation will be hosting a free virtual conference during the week of July 13-17, 2020. This will be an opportunity for the Moebius community to come together and educate, encourage, and connect with one another.

Please visit the virtual conference page for more information. 

Awareness Events

Are you hosting an awareness event in 2020? Please let us know the details and we will post them on our website! Email information and event pictures to jenny@moebiussyndrome.org

 Rare Disease Day

Rare Disease Day is the one-of-its-kind international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year. Each year, the Moebius Syndrome Foundation partners with the National Organization for Rare Disorders, the U.S. Official Sponsoring Organization. Learn more »