Events

MSF Book Club: Prave

Join us for our first book club meeting of the year on Sunday, February 25 at 1 pm PST/4 pm EST. We will be reading Prave: The Adventures of the Blind and the Brittle, by Dave Bahr. Dave is looking forward to joining our discussion, and is honored that we are reading his book. Book […]

Share Your Stripes – February 29 is Rare Disease Day!

With only around 6,000 cases of Moebius syndrome in the United States, we are rare! Wear your stripes, show your true colours, be your unique self, and post on social media during the month of February to bring attention and awareness to Moebius syndrome and other rare diseases. There are over 7,000 distinct rare diseases […]

Just for Adults with Moebius Chat

Mark your calendar! The next Just for Adults chat - a get-together for adults with Moebius syndrome, will be held Sunday, March 3, at 1 pm PST / 4 pm EST. This virtual event is for adults with Moebius syndrome looking to connect with other adults (18+) with Moebius and similar conditions to share advice, […]

LGBTQIA+ Get-together/Chat

Join us for a Zoom chat - open to all adults who identify as LGBTQIA+. Sunday, March 24 at 6 pm PST/9 pm EST. This will be a lively and safe space to talk and interact with other like-minded Moebius community members. This is a private chat and will not be recorded. Registration is required. […]

Educational Scholarship Deadline

The application for educational scholarships is due on Tuesday, April 30, 2024. The 2024 Educational Scholarship program is open to individuals with Moebius syndrome planning to attend college, technical, or trade school within the next year. Applicants must be residents of the United States.  The Moebius Syndrome Foundation will award several scholarships of up to […]

Carnival Cruise for Adults with Moebius

Seas the Day! A Carnival Cruise for Adults with Moebius You asked, and we listened! There have been many requests for more social opportunities specifically for adults with Moebius syndrome, and the Moebius Syndrome Foundation is pleased to announce that we are planning a cruise just for you. This exclusive cruise offers a fantastic opportunity […]