The Moebius Syndrome Foundation holds events throughout the year so that families and individuals living with Moebius can connect. Every day we provide free, online networks for you to easily connect with families and individuals from across the globe. Learn more »

Moebius Syndrome Foundation Conference

The Moebius Syndrome Foundation Conference is held every two years and is the pinnacle event for the organization. Attracting more than 400 people, the meeting brings together the Moebius community to learn about the latest scientific advances, educational sessions, medical consultations with the nation’s leading physicians and social activities. More information »

More information will be available soon.

Learn about past conferences and view photo galleries. View »

Moebius Syndrome Awareness Day

Moebius Syndrome Awareness Day is an annual event celebrated globally each year on January 24th — the birth date of Professor Paul Julius Moebius, the doctor who first diagnosed the condition in 1888. Join us to raise awareness about this rare condition and to educate the world. Learn more »

Rare Disease Day

Rare Disease Day is the one-of-its-kind international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year. Each year, the Moebius Syndrome Foundation partners with the National Organization for Rare Disorders, the U.S. Official Sponsoring Organization. Learn more »