Save the date in 2021!

The Moebius Syndrome Foundation is pleased to announce that the new dates for the 14th Moebius Syndrome Foundation have been confirmed. We will be meeting at the Marriott Minneapolis Northwest from July 23-25, 2021 and can’t wait to see you there!

The Moebius Syndrome Foundation is the nation’s largest organization dedicated to providing information and support to individuals with Moebius syndrome. The purpose of this conference is to bring families and individuals affected by Moebius syndrome together for education, research, and socialization opportunities.

Why should you attend a conference? Here’s what past attendees had to say:

“To all first-time conference-goers who have never been to a Moebius conference before, my thoughts are this: If you have not experienced it, GO. Go for the chance to meet so many other people like yourself who have similarities (and differences), for the chance to have unique conversations with kindred people, their families and the chance to create a network. Go for the fun of it, if you’re extroverted, to perform in the Talent Show or just to get your picture taken by Rick Giudotti, among hundreds of other community members. If you’re more introverted, go for the multitude of informational sessions, like I first did. I wanted to get to know more about what it means to have Moebius, from a scientific perspective. When you first arrive you’ll feel like you’ve entered a ‘culture shock’ environment but when you leave you’ll know you made the right choice because over the period of the conference you’ll have made friends and advocated for yourself in a way that might even surprise yourself. I certainly did and I keep going back to reconnect with those friends and to be a role model for all the younger generation who have the same disability that I have. These friends and people aren’t strangers anymore to me; they are a family.” – Jon Fisher, Colorado, Moebius Ambassador

“The Moebius Conference is an incredible opportunity for individuals and families to come together to share common experiences and learn from one another!  There is so much information specific to our community, which was helpful especially as a new parent looking for answers.  But my favorite is always getting to connect with other parents and to see connections made between our children.  And my daughters’ favorite part is the talent show!”  -Brittni Jones, Oregon

“In 2014, I attended my first Moebius Syndrome Conference in Washington D.C. It was a life changing experience in so many ways! The MSF conference has a little something for everyone – informational sessions, consultations with professional who are familiar with Moebius, opportunities to talk to individuals just like you, and social events that will introduce you to new friends. You won’t regret your decision to attend! I look forward to seeing you soon”  – Steven Maldonado, Member of the MSF Board of Directors

We hope you will make plans to attend next summer.

Please stay tuned for more information coming this fall to help plan your trip.

In the meantime, take a step back in time and remember the great time we had together at the 2018 St. Petersburg conference. Watch Now