IMPORTANT ANNOUNCEMENT:

Dear Moebius Syndrome Foundation Community,

We have made the difficult decision, once again, that it will be impossible for us to hold the Moebius Syndrome Foundation’s Conference and Scientific Research Symposium scheduled at the Marriott Minneapolis Northwest from July 22-25, 2021.

We did not make this decision lightly. The Moebius Syndrome Foundation, like the rest of the world, hoped a COVID-19 vaccine would return our lives to some semblance of normalcy by July 2021. However, it is now quite clear to us that this is most likely not a realistic hope, and the Foundation’s leadership and Scientific Advisory Board medical professionals believe there’s still too much uncertainty surrounding travel and large gatherings to hold an in-person conference. We also feel that letting this decision linger any longer could create unfair travel burdens or financial hurdles, and those are the last things that we want for our community. Most importantly, we must protect the most vulnerable within our community that are medically compromised. Consequently, the Board of Directors has decided unanimously that we are unable to safely host the in-person conference.

We regret having to make this decision and have deliberated carefully. With this said, please do not lose hope! We have many ideas in the works for how to engage and unite the Moebius community. We will release more details on future projects as soon as they are finalized.

It’s not what we hoped for, but we promise to make lemonade out of the lemons we’ve been given.

Thank you for your continued support and engagement. Because of you, we have much to look forward to in the future.

Sincerely,

Moebius Syndrome Foundation