Events

Moves for Moebius – Colorado

E. B. Rains Memorial Park 11801 Community Center Dr,, Northglenn, CO, United States

Join us for our first annual Moves for Moebius event in Colorado! This fun run/walk/roll event is for the entire family and we can't wait to have you join us. Together, we will raise awareness and funds to support the mission of the Moebius Syndrome Foundation, as well as have a fun time being together. […]

Moves for Moebius – Dallas-Fort Worth

FitAbility 2601 E Renfro St, Suite 240, Burleson, TX, United States

Join us for our first annual Moves for Moebius event in DFW! Together we will do a gentle exercise class geared towards individuals with all ability levels. Together, we will raise awareness and funds to support the mission of the Moebius Syndrome Foundation, as well as have a fun time being together. Light refreshments will […]

Just for Dads Chat

Connect with other dads of kids with Moebius syndrome! This private virtual event is for dads of children with Moebius syndrome to share advice, ask questions, or just chat about life in general. The discussion will be led by Michael Phillips and Eric McFall, dads of teenagers with Moebius syndrome. The session will not be recorded […]

Southwest Regional Event

White Sands National Park, Alamogordo, NM NM, United States

Monique Moreno and Brian Baca are hosting a social gathering for members of the Moebius community at White Sands National Park in Alamogordo, NM.  Members of the Moebius community living in the Southwest U.S. and anyone in the community who wants to travel to New Mexico for the event are invited to attend. This will […]

Just for Parents of Medically Complex Children

Connect with other parents of medically complex children with Moebius syndrome on this virtual event to share advice, suggestions, or just chat about life in general. The session will not be recorded and will be private and confidential so everyone can speak freely. Registration is required. Register by 5 pm ET on Tues, Oct. 24 […]

Just for Moms Chat

Connect with other moms of children with Moebius syndrome on this virtual event to share advice, suggestions, or just chat about life in general. The session will not be recorded and will be private and confidential so everyone can speak freely.   Registration is required. Register by 5 pm ET on Thurs, Nov. 2 to […]

Just for Adults Chat

This virtual event is for adults with Moebius syndrome of all ages looking to connect with other adults (18+) with Moebius syndrome and similar conditions to share advice, suggestions, or just chat about life in general. The session will not be recorded and will remain private and confidential so everyone can speak freely. Registration is required. […]

Just for Parents of Medically Complex Children Chat

The next Just for Parents of Medically Complex Children chat will be held on January 18, 2024, at 5:00 PM PST / 8:00 PM EST. This virtual event is for any parent who has a medically complex child with Moebius syndrome or a similar condition. This is a great time to connect and chat with […]

Just for Dads Chat

The next Just for Dads chat will be held on Monday, January 22, 2024, at 5:00 PM PST / 8:00 PM EST via Zoom. This virtual event is for dads who have children with Moebius syndrome and similar conditions, and are looking to connect and share advice, and just chat about life in general. This […]

Celebrate Moebius Syndrome Awareness Day with Us: “This is MoebiUS”

The Moebius Syndrome Foundation (MSF) proudly announces the observance of Moebius Syndrome Awareness Day on January 24, 2024. This year, we embrace the theme "This is MoebiUS" to highlight the unique stories, challenges, and triumphs of individuals living with Moebius syndrome. Join us in celebrating! The day's events will include worldwide virtual and in-person gatherings […]

Michigan Moebius Syndrome Awareness Day Gathering

Revel and Roll 1950 S Industrial Hwy, Ann Arbor, MI, United States

Calling all Michigan and surrounding state residents - join us for a fun afternoon of bowling, light refreshments and great company! Revel and Roll 950 S Industrial Hwy, Ann Arbor, MI 48104 This is a free event for individuals with Moebius syndrome. If you are a friend or family member without Moebius, we ask that […]

Just for Moms Chat

Please join us for the next Just for Moms chat on Thursday, February 1, 2024 at 6:00 PM PST / 9:00 PM EST. This virtual event is for all moms of children with Moebius syndrome and similar conditions. It is a casual, supportive, and private place to share experiences, ask questions, and visit. To maintain […]