This virtual event is for moms of children of all ages with Moebius syndrome looking to connect with other moms. Ask questions, share advice, laugh, and chat about life in general. Connect with other moms who get it! The session will not be recorded and will remain private and confidential so everyone can feel free […]
We are excited to announce that Hannah Setzer will join us for the MSF Book Club on May 13! Grab a copy of her book, “I’ll Pray for You and Other Outrageous Things Said to Disabled People” and register to join us for what will undoubtedly be a laugh filled conversation. Register by 5 pm […]
This virtual event is for adults of all ages looking to connect with other adults with Moebius syndrome and similar conditions to share advice, suggestions, or just chat about life in general. The session will not be recorded and will remain private and confidential so everyone can feel free to speak what is on their […]
Join us in Minneapolis, MN for the 16th Moebius Syndrome Foundation Conference on July 20-23, 2023. This is an amazing opportunity to meet, socialize and learn from others whose lives are also impacted by Moebius syndrome and similar facial differences. With more than 60 breakout sessions, nightly social events, and complimentary medical and research evaluations, […]
In memory of Judith Heumann, one of the most influential disability rights activists in US history, the MSF August Book Club is reading “Being Heumann: An Unrepentant Memoir of a Disability Rights Activist”. This book recounts Judy’s lifelong battle to achieve respect, acceptance, and inclusion in society. She was known as the “Mother of the […]
This virtual event is for adults with Moebius syndrome of all ages looking to connect with other adults (18+) with Moebius syndrome and similar conditions to share advice, suggestions, or just chat about life in general. The session will not be recorded and will remain private and confidential so everyone can feel free to speak […]
Join us for our first annual Moves for Moebius event in Washington! This fun run/walk/roll event is for the entire family and we can’t wait to have you join us. Together, we will raise awareness and funds to support the mission of the Moebius Syndrome Foundation, as well as have a fun time being together. […]
Please join us for our first annual Moves for Moebius event in Idaho! This 5K run/walk/roll event is for the entire family and we can't wait to have you join us. Together, we will raise awareness and funds to support the mission of the Moebius Syndrome Foundation, as well as have a fun time being […]
Join us for our first annual Moves for Moebius event in Houston! This fun run/walk/roll event is for the entire family and we can’t wait to have you join us. Together, we will raise awareness and funds to support the mission of the Moebius Syndrome Foundation, as well as have a fun time being together. […]
Join us for our first annual Moves for Moebius event in Colorado! This fun run/walk/roll event is for the entire family and we can't wait to have you join us. Together, we will raise awareness and funds to support the mission of the Moebius Syndrome Foundation, as well as have a fun time being together. […]
Join us for our first annual Moves for Moebius event in DFW! Together we will do a gentle exercise class geared towards individuals with all ability levels. Together, we will raise awareness and funds to support the mission of the Moebius Syndrome Foundation, as well as have a fun time being together. Light refreshments will […]
Connect with other dads of kids with Moebius syndrome! This private virtual event is for dads of children with Moebius syndrome to share advice, ask questions, or just chat about life in general. The discussion will be led by Michael Phillips and Eric McFall, dads of teenagers with Moebius syndrome. The session will not be recorded […]