When: January 24
What: Moebius Syndrome Awareness Day is an annual event celebrated globally each year on January 24th — the birth date of Professor Paul Julius Moebius, the doctor who first diagnosed the condition in 1888.
The goal of Moebius Syndrome Awareness Day is to raise awareness about this rare condition and to educate the world. Each year participants are encouraged to wear purple and raise awareness through various means and channels.
How Do You Express Yourself? OSU #MoebiusAwareness Project
How do you express yourself? There are so many unique ways to express your true self to others, and individuals with Moebius Syndrome find ways beyond the face to do so. Research in OSU’s Disability and Social Interaction Lab shows that education about Moebius syndrome and other types of facial paralysis creates more positive impressions.
Help us raise awareness: take a photo of yourself with a sign answering the question, “how you express yourself?” Use our template, or write your own. Post it on the Moebius Syndrome Foundation Facebook page. Challenge two of your friends to do the same by tagging them. Read more about OSU’s awareness project: http://liberalarts.oregonstate.edu/sps/dsil/moebius-syndrome-awareness-project
MSF MSAD Regional Gatherings
Santa Monica, California in January 20 https://www.facebook.com/events/683224438732038/
Lafayette, California in January 28 https://www.facebook.com/events/1928772350680952/
Houston, Texas in January
Come celebrate Moebius Syndrome Awareness Day with us at the Houston MSAD gathering on Saturday, January 26th. .
Our event will be held from 12:00 noon to 4:00 pm at St. Theresa’s Catholic Church in their church hall. The address is 6622 Haskell St., Houston, Texas, 77007. The church is located just to the east of Memorial Park.
We will be providing food and beverages for the attendees. This will be a great opportunity for members of our local Moebius community to mix and mingle. Local professionals are being invited to attend, meet attendees, answer and address questions, etc. Childrens’ activities and games will also be provided.
Finally, we will be drawing for various door prizes.
Anyone planning to attend should RSVP by e-mailing Roland Bienvenu at email@example.com or Larry Garza at firstname.lastname@example.org. Questions can also be addressed by e-mailing us at these addresses.