2014 Conference · 2012 Conference · Older Conferences

12^th Moebius Syndrome Foundation Conference

July 15-17, 2016 • Long Beach Hilton — Long Beach, California

• Rick Guidotti Positive Exposure Photo Gallery » (pw: California)
• Photo Gallery on Flickr »
• Conference Slideshow »

11^th Moebius Syndrome Foundation Conference

July 18 –20, 2014 • Bethesda North Marriott Hotel & Conference Center
North Bethesda, Maryland

2014 Moebius Syndrome Foundation Conference Slideshow from Moebius Syndrome Foundation (Vimeo).
375 people from throughout the world attended the 11th Moebius Syndrome Foundation Conference.

• Rick Guidotti Positive Exposure Photo Gallery » (pw: bethesda)
• Photo Gallery 1 on Flickr »

Selected Conference Presentations

Looking Imperfect in a Look-Perfect World: Insights and Challenges »
James Partridge

Speech Clarity for 3 Years of Age Through Adults: It’s Never Too Late! »
Sara Rosenfeld-Johnson MS, CCC-SLP

Alternative Therapies: Essential Oils from A to Z for a Moebius Family »
Emily Calhoon

Respiratory Care of Children with Rare Diseases »
Sharon McGrath-Morrow MD

Moebius Syndrome and Sleep »
Jennifer Accardo, MD

Defining Your Pathway to Employment »
Elizabeth Jennings

A Discussion of the Social Psychology of Moebius Syndrome »
Kathleen Bogart PhD

Service Dogs in Supporting Independence for People with Disabilities »
Natalie Abbott

10^th Moebius Syndrome Foundation Conference

July 13-15, 2012 • Sheraton Philadelphia Downtown, Philadelphia, PA

• Rick Guidotti Positive Exposure Photo Gallery » (password: philly)
• Flickr Photo Gallery »

View Conference Videos

Dr. Francis Collins, Director of the National Institutes of Health, presenting and singing a song at the Opening Session.

2012 pt 6 Moebius Syndrome Foundation Conference from Moebius Syndrome Foundation (Vimeo).

View Conference Presentations and Blog Posts

Susannah Fox: “What People Living With Rare Diseases Can Teach Us”
http://e-patients.net/archives/2012/07/facial-paralysis-not-personality-paralysis.html »
http://e-patients.net/archives/2012/07/health-care-hackers.html »

9^th Moebius Syndrome Foundation Conference

July 30 – August 1, 2010 • Broomfield, Colorado

View Conference Slideshow »

2010 Moebius Syndrome Foundation Conference Slideshow from Moebius Syndrome Foundation (Vimeo)

Older Conferences

8th – 2008 Parsippany, New Jersey
7th – 2006 San Francisco, California
6th – 2004 Arlington, Texas
5th – 2002 St. Charles, Ilinois
4th – 2000 Sturbridge, Massachusetts
3rd – 1998 Toronto, Canada
2nd –1996 Tarrytown, New York
1st – 1994 Los Angeles, California