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No matter where you are in your journey of raising a child with Moebius syndrome, the Moebius Syndrome Foundation strives to offer you information and resources to guide you along the way. This section of the website is devoted to empowering you as a caregiver or parent of a child with Moebius syndrome. Ultimately, your knowledge will help smooth the road for your child as he or she navigates medical care, school, and self-confidence.
There is something special about talking with someone who understands your experience without needing it explained. For many people in the Moebius syndrome community, that kind of connection can be hard to find close to home. Moebius Connections is here to help close that distance.
Building on the mentorship and friendship program we first offered in 2022, we have redesigned Moebius Connections based on what we learned from you. The result is a program centered on personal, meaningful support that helps community members connect virtually, wherever they live.
Moebius Connections is open to individuals ages 13 and up in the Moebius syndrome community. Whether you are hoping to build a lifelong friendship, talk with a peer who understands, or find guidance as you navigate school and career decisions, there is a place for you here.
Whether you want to make a new friend, share your story, find a mentor, or be that support for someone else, we would love for you to join us.
Sign up for Moebius Connections
Know someone who might benefit? Please share this post with them. The more people who take part, the more opportunities there are for meaningful matches across our community.
Presented by Jessica Maher, Austin Halls, Alli Johnson | July 17, 2022
September 15, 2022
Presented by Rhonda Robert, Ph.D., and Diana Guzman, MA, LPC
Presented by Dani Doughty