The Moebius Syndrome Foundation is so excited to announce that it has received the Global Genes RARE Patient Impact Grant. The grant support will educate the Moebius community about Oral Placement Therapy at the upcoming Moebius Syndrome Foundation Conference. For the first time, Feeding and Speech Clarity consultations will be offered free of charge!

Two therapists will provide individual speech & feeding consultations. Each is a 45 minute evaluation which  provides an overview of the muscle based activities that can be used by both therapists and parents to improve verbal communications and feeding safety.  In the past, individuals were charged $75 for this consultation. For the first time, with this generous grant support, the consultations will be offered free of charge.

There are also two sessions at the Moebius Syndrome Foundation Conference which address Oral Placement Therapy:

  • Feeding for Infants and Toddlers:  Renee Roy Hill , MS, CCC-SLP
  • Speech Clarity for 3 Years of Age through Adults:  It’s Never Too Late: Sara Rosenfeld-Johnson, MS, CCC-SLP

This is a real honor and we are grateful to Global Genes to provide these opportunities to the Moebius community.

Consultations will be scheduled on a first-come-first-serve basis, so it is important to register early. Registration for the 12th Moebius Syndrome Foundation Conference is now open!! Click here.

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