The Moebius Syndrome Foundation is pleased to announce that four new members have been added to the Board of Directors:


Bryn Webb, MD, New York City       

Dr. Webb is Board Certified in Clinical Genetics and Pediatrics and is Assistant Professor in the Department of Genetics and Genomic Science & Pediatrics at the Ichan School of Medicine at Mt. Sinai Hospital in New York City.  She is also the Co-Director of the Cleft & Craniofacial Clinic at Mt. Sinai Hospital, and is an active investigator in genetic research to better understand the etiology of Moebius syndrome and its associated conditions.  She has presented at numerous Moebius Syndrome Foundation Scientific Symposiums and has worked with many individuals who have Moebius syndrome.


Paula Keebler Santana, Orinda, CA       

Ms. Santana holds an MBA and Masters of Public Health from the University of California at Berkeley.  She is currently a Marketing Director for Medivation, Inc., a large pharmaceutical company recently acquired by Pfizer, and has worked in the field for over 20 years.  She is the mother of a young son who has Moebius syndrome.


Rebecca L. Maher, Wesley Chapel, FL     

Ms. Maher has 22 years’ experience in sales and marketing for Novartis Pharmaceuticals Corporation and is a Senior Area Business Leader for the Southeast Region.  She holds a Bachelor’s Degree from the University of Illinois Urbana-Champaign, has attended Moebius Syndrome Conferences since 2002 and is the mother of a teenaged daughter with Moebius syndrome.  Rebecca is on the 2018 conference planning committee.


Kelsey Ferrill, Calgary, Alberta  

Ms. Ferrill holds a Bachelor’s Degree in Communication Studies from the University of Calgary and earned a Journalism Diploma with Honors at SAIT Polytechnic in Calgary.  She was a News Intern at Global News in Calgary and has appeared many times in various magazines, newspapers and television shows sharing her story of living with Moebius syndrome.


On August 1, 2018, the following individual will join the Board of Directors:

Nicole Kovite Zeitler, Hyattsville, MD       

Ms. Zeitler is a Trial Attorney in the Disability rights Section of the Civil Rights Division at the US Department of Justice where she works exclusively on the Americans With Disabilities Act.  She previously practiced campaign finance law at the Federal Election Commission.   Ms. Zeitler holds a JD and BA in International Studies from the University of Washington in Seattle.  She is the mother of a young son with Moebius syndrome.

Steven Maldonado, Houston, TX         

Mr. Maldonado holds a Bachelor’s Degree in Business Administration from the University of Houston and is completing his MBA at Texas A&M University.  He currently is an Administrative Coordinator III in Immunology, Allergy and Rheumatology at Baylor College of Medicine where he is an administrator for NIH grants.  Mr. Maldonado is a guest speaker in the Baylor College of Medicine, Compassion and the Art of Medicine Seminar Series, where he shares his life experiences as an adult with Moebius syndrome.


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