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  • About Moebius »
    • What is Moebius syndrome? »
    • For the newly diagnosed »
    • For infants and children living with Moebius syndrome »
    • For young adults »
    • For adults living with Moebius syndrome »
    • For friends and relatives »
    • For professionals »
    • Treatment options »
  • Who we are »
    • Mission and History »
    • Foundation Leadership »
    • Scientific Advisory Board »
    • Press room »
    • Our stories »
    • Financial Overview »
  • Support & Resources »
    • Videos, Webinars, and Products »
    • Articles, Publications & Books »
    • Moebius Syndrome Foundation Educational Scholarship Program »
    • School Resources »
    • Connect with Others »
    • Newsletters »
    • Partner organizations »
    • Employment resources »
    • Financial resources »
    • Listing of healthcare service providers »
    • Dental concerns »
    • Moebius Syndrome Foundation Online Store »
  • Events »
    • 2023 Moebius Syndrome Foundation Minneapolis Conference »
    • Moebius Syndrome Awareness Day »
    • Past Conferences »
    • Moebius Syndrome Foundation Scientific Research Symposium »
  • Get involved »
    • Join Now »
    • Donate »
    • Moebius Syndrome Foundation Legacy Society »
  • Research »
    • Overview »
    • NIH research study »
    • Scientific Advisory Board »
    • Research symposiums »
    • Research articles »
  • Videos »
 
 
Moebius Syndrome Foundation
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CONTACT US

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Moebius Syndrome Foundation

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info@moebiussyndrome.org

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Get involved

There are many ways you can help the Moebius Syndrome Foundation. Whether it is lending your voice, giving your time, sharing your story, or hosting an event, your help is greatly appreciated. Thank you for helping us achieve our mission!

(1) Submit to Moebius News

The official newsletter of the Foundation, Moebius News, is mailed out to all U.S. and Canadian members twice a year. Learn More »

(2) Host a Moebius Get-Together

Members across the country are encouraged to host events such as picnics, parties, and fundraisers. Learn More »

(3) Share your story

The Moebius Syndrome Foundation has extensive contacts within the national media. If you are interested in sharing your story, we can help you take the next steps. Share here »

(4) Volunteer your time

Interested in volunteering at the Moebius Syndrome Conference? Contact us to learn about upcoming opportunities. Email us »

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