There are many ways you can help the Moebius Syndrome Foundation. Whether it is lending your voice, giving your time, sharing your story, or hosting an event, your help is greatly appreciated. Thank you for helping us achieve our mission!

(1) Become a Moebius Ambassador

Moebius Ambassadors are volunteers interested in raising awareness of Moebius syndrome and promoting the importance of rare disorders within their local communities. Learn More »

(2) Submit to Moebius News

The official newsletter of the Foundation, Moebius News, is mailed out to all U.S. and Canadian members twice a year. Learn More »

(3) Host a Moebius Get-Together

Members across the country are encouraged to host events such as picnics, parties and fundraisers. Learn More »

(4) Share your story

The Moebius Syndrome Foundation has extensive contacts within the national media. If you are interested in sharing your story, we can help you take the next steps. Email us »

(5) Volunteer your time

Interested in volunteering at the Moebius Syndrome Conference? Contact us to learn about upcoming opportunities. Email us »