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    • For the newly diagnosed »
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    • For friends and relatives »
    • For professionals »
    • Treatment options »
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  • Who we are »
    • Mission and History »
    • Foundation leadership »
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    • Our stories »
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    • Moebius Syndrome Foundation Educational Scholarship Program »
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    • Partner organizations »
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    • Listing of healthcare service providers »
    • Dental concerns »
    • Talkin’ Moebius Webinars »
    • Moebius Syndrome Foundation Online Store »
  • Events »
    • 2021 Moebius Syndrome Foundation Conference »
    • Past Conferences »
    • Regional Events »
    • Moebius Syndrome Awareness Day »
    • Scientific Research Symposiums »
  • Get involved »
    • Join Now »
    • Donate »
  • Research »
    • Overview »
    • NIH research study »
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Moebius Syndrome Foundation

The Home for the Moebius Community TM

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Your donation will help the Moebius Syndrome Foundation achieve its mission. As an organization dedicated to improving the lives of those living with Moebius syndrome:

  • We send packets of information to all new members. Babies and toddlers receive a Moebius Syndromewith mommy 2 Foundation t-shirt!
  • We work with families with newborns who have been recently diagnosed as well as those with older children.
  • We provide resources and networking opportunities for adults and young adults living with Moebius.
  • We support and fund scientific research into the causes and treatments for Moebius syndrome.
  • We send a bi-annual newsletter to all of our members.
  • The Moebius Syndrome Foundation Conference is an amazing event and is held every two years.
  • We provide financial assistance to families in need through our conference scholarship fund.

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You can also support the Moebius Syndrome Foundation by using:

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You can also mail checks made out to “Moebius Syndrome Foundation” and mail to: P.O. Box 147, Pilot Grove, MO 65276.

The Moebius Syndrome Foundation is recognized as a charitable organization – 501(c) (3) by the Internal Revenue Service. Contributions are tax deductible. EIN # 13-3753992. Financial information on the Moebius Syndrome Foundation is available on GuideStar.

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This is the official website of the Moebius Syndrome Foundation, a 501 (c) 3 organization. The Moebius Syndrome Foundation and its Board does not diagnose Moebius syndrome in individuals nor does it endorse particular medical professionals, treatments, products or services. The Moebius Syndrome Foundation has trademarked its logo and tagline. Expressed written consent is required for use.

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