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    • For the newly diagnosed »
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    • For adults living with Moebius syndrome »
    • For friends and relatives »
    • For professionals »
    • Treatment options »
  • Who we are »
    • Mission and History »
    • Foundation Leadership »
    • Scientific Advisory Board »
    • Press room »
    • Our stories »
    • Financial Overview »
  • Support & Resources »
    • Videos, Webinars, and Products »
    • Articles, Publications & Books »
    • Moebius Syndrome Foundation Educational Scholarship Program »
    • School Resources »
    • Connect with Others »
    • Newsletters »
    • Partner organizations »
    • Employment resources »
    • Financial resources »
    • Listing of healthcare service providers »
    • Dental concerns »
    • Moebius Syndrome Foundation Online Store »
  • Events »
    • 2023 Moebius Syndrome Foundation Minneapolis Conference »
    • Moebius Syndrome Awareness Day »
    • Past Conferences »
    • Moebius Syndrome Foundation Scientific Research Symposium »
  • Get involved »
    • Join Now »
    • Donate »
    • Moebius Syndrome Foundation Legacy Society »
  • Research »
    • Overview »
    • NIH research study »
    • Scientific Advisory Board »
    • Research symposiums »
    • Research articles »
  • Videos »
 
 
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CONTACT US

844-MOEBIUS  

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Moebius Syndrome Foundation

1312 17th Street #976
Denver, Colorado  80202

info@moebiussyndrome.org

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If sending a check, please mail to: Moebius Syndrome Foundation, 1312 17th Street, #976, Denver, CO 80202

 

Your gift will directly impact the lives of people affected by Moebius syndrome. Our mission is to provide information and support to individuals with Moebius syndrome and their families, promote greater awareness and understanding of Moebius syndrome, and advocate for scientific research to advance the diagnosis and treatment of Moebius syndrome and its associated conditions. We have come a long way since we became established in 1994, but we still have much work we need to do. See the impact our donors had on our mission in 2022!

 

Your donation will help the Moebius Syndrome Foundation achieve its mission by:

  • We send packets of information to all new members. Babies and toddlers receive a Moebius Syndrome Foundation t-shirt, bib, sunglasses, teddy bears, and more.
  • We work with families with newborns who have been recently diagnosed as well as those with older children.
  • We provide resources and networking opportunities for adults, young adults, and families living with Moebius syndrome and related conditions.
  • We support and fund scientific research into the causes and treatments for Moebius syndrome and its related conditions.
  • We send a bi-annual newsletter to all our members through print and email.
  • Deserving students attending college, technical, or trade schools are awarded scholarships each year.
  • The Moebius Syndrome Foundation Conference hosts a national conference every two years.
  • Our conference scholarship fund provides financial assistance to first-time attendees and families in need.
  • We support awareness and advocacy events to help spread information about Moebius syndrome.

Thank you for your continued support of our work!

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The Moebius Syndrome Foundation is recognized as a charitable organization – 501(c) (3) by the Internal Revenue Service. Contributions are tax-deductible to the full extent of the law. EIN # 13-3753992. Financial information on the Moebius Syndrome Foundation is available on GuideStar.

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This is the official website of the Moebius Syndrome Foundation, a 501 (c) 3 organization. The Moebius Syndrome Foundation and its Board does not diagnose Moebius syndrome in individuals nor does it endorse particular medical professionals, treatments, products or services. The Moebius Syndrome Foundation has trademarked its logo and tagline. Expressed written consent is required for use.

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