The Moebius Syndrome Foundation holds events throughout the year so that families and individuals living with Moebius can connect. Every day we provide free, online networks for you to easily connect with families and individuals from across the globe. Learn more »

2022 Calendar of Events

October 2022 – May 2023 View Events

These events are subject to change and new events may be added. Please check back often for the most current information, or contact us with questions.

2023 Moebius Syndrome Foundation Conference in Minneapolis, MN

The Moebius Syndrome Foundation is excited to announce the dates for its 16th next national conference in Minneapolis, Minnesota.

On July 20-23, 2023, all members and supporters of the Moebius community are invited to attend a spectacular weekend full of social, educational, and research opportunities. Registration will open in February 2023, and we hope you will make plans to join us. We are excited to be together again!

For more information about this conference, please contact us. More information will be available on our website in late 2022.

Awareness Events

Are you hosting an awareness or social gathering event? Please let us know the details, and we will post them on our website! Additionally, the Moebius Syndrome Foundation offers financial support and resources to approved events. Contact us for information on how we can support your event.

 Rare Disease Day

Rare Disease Day is the one-of-its-kind international advocacy day to bring widespread recognition of rare diseases as a global health challenge. The day is celebrated on the last day of February every year. Each year, the Moebius Syndrome Foundation partners with the National Organization for Rare Disorders, the U.S. Official Sponsoring Organization. Learn more »