Mark your calendar to join us in Minneapolis, MN on July 20-23, 2023 for the Moebius Syndrome Foundation national conference. The Moebius Syndrome Foundation conferences are the largest gatherings for the Moebius community in the world. This conference welcomes medical professionals, caregivers, and individuals with Moebius syndrome and similar facial differences for 3-days of breakout sessions specific to Moebius syndrome, complimentary medical consultations, and fun social events. If you are a member of the Moebius community, this is an event you don’t want to miss!
Below is some basic information to help you start making plans. Please stay tuned in the coming months as more information will be provided. If you have questions about the conference, please email email@example.com, or call us at +1(844) MOEBIUS ext. 704, or +1(844-663-2487 ext. 704.
Minneapolis Marriott Northwest
7025 Northland Dr. N.
Brooklyn Park, MN 55428
Hotel website (Not for discount guest room reservations)
The Moebius Syndrome Foundation negotiated a discounted group rate for conference attendees. Click to reserve a hotel room with the discounted group rate now. Hotel rooms are limited, so we recommend that you book early.
The discounted group rate is $154 (+tax) per night. The deadline to book a discounted hotel room is Thursday, June 29, 2023.
The hotel has ADA-accessible guest rooms and adjoining guest rooms for families available. If you need assistance with reserving adjoining rooms for your family, please email firstname.lastname@example.org.
All parking at the hotel is complimentary for guests and local conference attendees.
AIRPORT AND TRANSPORTATION
The Minneapolis – Saint Paul International Airport (MSP) is the closest airport to the conference location.
The airport is located 25 miles from the hotel. Below are a variety of transportation options available at the airport.
- Local Taxi
- Uber/Lyft/other ride-share services
- Super Shuttle – Large private or shared vans to/from the airport. Great for large families or groups. Reservation required. https://booking.supershuttle.com
- Car Rental – all major car rental companies are available
A ride-share sign-up list will be available in the event app when registration opens for those that would like to coordinate transportation to share costs.
SPONSORS AND EXHIBITORS
The generosity of sponsors enables the Moebius Syndrome Foundation to offer reasonably priced registration rates and provide scholarships for individuals and families with financial needs. We have some exciting new opportunities for sponsorship that will be made available soon. We will be sending out email notifications, social media publications, and also include information in the conference brochure that will be available in late January or early February.
The conference will have space available for exhibitor tables. Businesses with products or services for individuals with Moebius syndrome and their families are invited to be an exhibitor. This may include but is not limited to assistive technology companies, medical specialists, adaptive clothing, financial planning, and MLM representatives that sell jewelry, nutrition products, books, games, etc.
Exhibitor tables will be assigned as applications are received and approved. We will close the exhibitor applications when all the tables are full.
NOW AVAILABLE! MSF 2023 Sponsor and Exhibitor Flier
If you have questions, please email email@example.com.
The conference registration will open on February 1, 2023. Please watch for an email with the registration link when it opens.
The Moebius Syndrome Foundation will provide scholarships to a limited number of First-Time Attendees with a financial need, and additional Financial Need scholarships to a limited number of individuals and families.
The scholarship application will be available in early February 2023 when the conference registration opens. We highly recommend submitting an application when the scholarship application becomes available because they typically go quickly.
Complimentary medical consultations will be available at the conference. These are a few of the medical consultations that will be available:
- Orthopedic Management by Dr. Philip McClure, International Center for Limb Lengthening
- Pulmonary Complications Evaluations for Children and Adults by Dr. Hollis Chaney, Children’s National Hospital
- Neuromuscular Retraining for Facial Paralysis by Jacqueline Diels, OT
- Obstructive Sleep Apnea Evaluations by Dr. Greg Osborne, Sleep Easy Dentistry
- Genetic Research into Moebius Syndrome
The website to book consultation appointments will open in February 2023. Appointments are on a first-come, first-served basis, so we highly recommend booking appointments as soon as the system opens.
PLAN YOUR VACATION
Minnesota is a beautiful location to visit in the summer! The state contains more than 10,000 lakes including Lake Superior, the largest of the Great Lakes. The state capital, St. Paul, and neighboring Minneapolis make up the Twin Cities, featuring a variety of museums, diverse restaurants, pro sports teams, award-winning theater, a booming craft beer scene, and Mall of America, the largest indoor mall in North America. There are many great outdoor adventures including hiking, biking, ATV trails and water sports.
Why should YOU attend the conference? Listen to what these attendees at the 2022 conference shared about their experience.
“The very best part of this conference was being able to connect with our
people! Watching the Moebius family share joy and pain, hugs, smiles from
their hearts, and a level of acceptance unknown in their everyday lives was
priceless and unforgettable.”
“This past weekend, we spent every second, every minute, and every hour
with NO judgment, NO stares, NO uncomfortableness. Every amazing
person we encountered just GOT it. They understood the struggles, the
setbacks, and the confusion associated with this syndrome, and they
listened and shared in every moment together. They also shared their
triumphs and victories, and we saw how talented each person is.”
“The Atlanta Moebius Syndrome Conference 2022 is in the books. It was a great time to see friends, make new ones, and watch our girl live her best life. We are grateful for these experiences and walk away a little wiser and
humbled by the depth of humanity in this amazing community.”
“I could go on and on about how this extraordinary convention has filled a void I didn’t even know was there. It doesn’t matter how many conferences we attend, there is always something new to gain and learn. We all truly get each other. There is no judgment, just genuine love, unlimited support, and true camaraderie.”