On April 5-, 2019, the Moebius Syndrome Foundation hosted its first Mini-Conference in Portland, Oregon.

Held at the Red Lion Hotel, the event was attended by over 40 community members, and included a full day of educational and social sessions, a dance, and picnic at a park.

We had several special speakers and guests that participated at the Moebius Syndrome Foundation Portland Mini-Conference. Learn more about them below.

Dr. Kathleen Bogart

Presenting: The Psychology of Living Well with Moebius

Bogart MSF Portland talk 040119

Brandy Pirtle Guiney, Attorney

Presenting: Navigating Employment with Moebius Syndrome: Legal Protections in State and Federal Law

Moebius Conference – Employment & 504 Presentation

Kelsey Ferrill

Presenting: How to Host a Successful Awareness Event

MoebiusPortlandMiniConference-040618

Brittni Jones

Presenting: 504 Plans

Moebius Conference – Employment & 504 Presentation

Kaeleen Kirkpatrick, Psychologist

Presenting: Children’s Chat & Art Therapy

Steven Maldonado, Current Board Member

Presenting: Leadership and Mentoring

Allyson Goodwyn-Craine, M.S., CCC-SLP, CLC, BCS-S

Presenting: Pediatric Feeding

Rojo

Joining us is a local celebrity, Rojo the Therapy Llama. Rojo with be available for hugs and photos with everyone.