When: January 24
What: Moebius Syndrome Awareness Day is an annual event celebrated globally each year on January 24th — the birth date of Professor Paul Julius Moebius, the doctor who first diagnosed the condition in 1888.
In 2011, Moebius Syndrome Awareness Day was started by the Many Faces of Moebius Syndrome, and has been embraced globally by other organizations that support efforts to raise awareness. The Moebius Syndrome Foundation recognizes the month of January as a time to raise awareness about this rare condition and educate the world about Moebius syndrome. We celebrate #MSAD by sharing information about Moebius syndrome, offering financial support and resources to approved events, encouraging people to wear purple, and raising awareness through various means and channels.
In 2021, because of health & safety concerns, the Moebius Syndrome Foundation does not encourage any in-person Awareness Day events in the month of January. However, there are many other ways that we can spread awareness about Moebius syndrome, and celebrate our differences together.
What I Want the World to Know About Moebius Syndrome
In 2021, the Moebius Syndrome Foundation’s theme for the month of January is “What I Want the World to Know About Moebius Syndrome.” We rallied the Moebius community and asked them to share their stories, and this is what they had to say in their own words. Please check out the following videos and infographics that we’ve also shared on our social media pages.
Press Release and other News Articles
“7 Things to Understand on Moebius Syndrome Awareness Day“, by Dr. Kathleen Bogart, PhD
Tools For Hosting An Event
MSAD EVENT Toolkit 2021 Event Planning Toolkit!
Hello My Name Is Labels For any 10 label sheet
MSAD Flyer Event Flyer Template
MSAD SAMPLE PRESENTATION Sample PowerPoint Presentation
How Do You Express Yourself? OSU #MoebiusAwareness Project
How do you express yourself? There are so many unique ways to express your true self to others, and individuals with Moebius Syndrome find ways beyond the face to do so. Research in OSU’s Disability and Social Interaction Lab shows that education about Moebius syndrome and other types of facial paralysis creates more positive impressions.
Help us raise awareness: take a photo of yourself with a sign answering the question, “how you express yourself?” Use our template, or write your own. Post it on the Moebius Syndrome Foundation Facebook page. Challenge two of your friends to do the same by tagging them. Read more about OSU’s awareness project: http://liberalarts.oregonstate.edu/sps/dsil/moebius-syndrome-awareness-project
2020 MSAD EVENTS
Houston, Texas Event- January 18, 2020
Arizona MSAD Event – January 25, 2020
Colorado MSAD Event – January 25, 2020
Group picture taken in Castle Rock, CO. Event hosted by The Many Faces of Moebius Syndrome.
New York City MSAD Event – January 25, 2020
2nd Annual MSAD Event
San Angelo, Texas MSAD Event – January 25, 2020
Moebius Fun Run / Walk – benefitting Kara Smiles Fund
For information and to register, please visit the official website.
Lafayette, California MSAD Event – January 25, 2020
MSAD Pizza Party!
MSAD in the News
2019 MSAD EVENT PHOTOS
Minnesota Event- February 23, 2019
(Photos coming soon!)
San Angelo, Texas- 5k Walk/Run for “Kara Smiles” –January 19, 2019 https://www.saafound.org/karasmiles
Northern California Event- January 20, 2019
Arizona Event- January 26, 2019
New York City, NY Event – January 26, 2019
Houston, Texas Event – January 26, 2019