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CONTACT US

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Moebius Syndrome Foundation

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info@moebiussyndrome.org

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Moebius Syndrome Awareness Day

 

 

 

 

 

When: January 24

What: Moebius Syndrome Awareness Day is an annual event celebrated globally each year on January 24th — the birth date of Professor Paul Julius Moebius, the doctor who first diagnosed the condition in 1888.

In 2011, Moebius Syndrome Awareness Day was started by the Many Faces of Moebius Syndrome and has been embraced globally by other organizations that support efforts to raise awareness. The Moebius Syndrome Foundation celebrates #MSAD by sharing information about Moebius syndrome, offering financial support and resources to approved events, encouraging people to wear purple, and raising awareness through various means and channels.

 

Tools For Hosting An Event

Hello My Name Is Labels    

MSAD SIGN-IN SHEET

MSAD Flyer 

MSAD SAMPLE PRESENTATION     

PASS ALONG CARDS: These cards can be saved to your computer, and then uploaded to a website that prints business cards (Vista Print is one example) to be printed and shipped to your home. There are ideally sized to carry in your wallet and have ready to pass out when you meet someone that wants to know more about Moebius syndrome. If you’d like a card personalized with your child’s photo, please contact us.

2022 Awareness Events

Press Release

Theme: Moebius Syndrome Awareness Every Day

In 2022, the Moebius Syndrome Foundation is focusing on raising awareness about Moebius syndrome every day! If you are planning an event or would like ideas on ways you can raise awareness this year, please contact us.

The Moebius Syndrome Foundation helps to financially support approved awareness events, in addition to sending promotional and informational materials and helping to publicize your event. Whether it be an event at your home, a park, restaurant, or another public venue,  handing out information at school or workplaces, or other types of awareness events, we are here to support you. Please contact us for more information.

Updated January 13, 2022: Considering the rapid spreading and highly contagious Omnicron variant of Covid-19, the Moebius Syndrome Foundation strongly encourages our members to consider not meeting in person for awareness events during the month of January. If you do decide to gather in a group setting, we ask that you please consider all state and local health mandates and safety precautions. Furthermore, we would like to remind our members that awareness campaigns and celebration events can be held at any time of the year- not just January- and to consider postponing in-person gatherings until the health climate improves.

Moebius Syndrome Awareness Facebook Live Video, January 9, 2022

Panelists: Phyllida Swift from Face Equality International, Andrea Smith from Many Faces of Moebius Syndrome, Dina Zuckerburg from myFace, Jennifer Garvey, Paula Santana, KiOwana Phillips; Moderated by Kelsey Ferrill from Moebius Syndrome Foundation

View Here

Chicago, Illinois (During the Entire Month of January!)

This year Brother Chimp Brewing has joined the mission to spread awareness for the ENTIRE MONTH of January! https://brotherchimpbrewing.com/— Smile, our English Brown Ale with Coffee, will be the charity beer. For each pint purchased, $1 will be donated to two different charities:

  • The Moebius Syndrome Foundation
  • Many Faces of Moebius Syndrome

Drop by for your MSAD awareness promotional items (while supplies last), and to support a great cause. Please visit the website link above for their address and contact details.

 

MSAD Partners

Many Faces of Moebius Syndrome

Moebius Research Trust

Children’s Craniofacial Association

Face Equality International

News Articles

“7 Things to Understand on Moebius Syndrome Awareness Day“, by Dr. Kathleen Bogart, PhD

2021 AWARENESS EVENTS

2021 Press Release

In 2021, because of health & safety concerns, the Moebius Syndrome Foundation does not encourage any in-person Awareness Day events in the month of January. However, there are many other ways that we can spread awareness about Moebius syndrome, and celebrate our differences together.

What I Want the World to Know About Moebius Syndrome

In 2021, the Moebius Syndrome Foundation’s theme for the month of January is “What I Want the World to Know About Moebius Syndrome.” We rallied the Moebius community and asked them to share their stories, and this is what they had to say in their own words. Please check out the following videos and infographics that we’ve also shared on our social media pages.

2020 MSAD EVENTS

Houston, Texas Event- January 18, 2020

Sixth Annual Houston-area Moebius Syndrome Awareness Day event

Arizona MSAD Event – January 25, 2020

 

Colorado MSAD Event – January 25, 2020

Group picture taken in Castle Rock, CO. Event hosted by The Many Faces of Moebius Syndrome.

 

New York City MSAD Event – January 25, 2020

2nd Annual MSAD Event

San Angelo, Texas MSAD Event – January 25, 2020

Moebius Fun Run / Walk – benefitting Kara Smiles Fund

For information and to register, please visit the official website.

Lafayette, California MSAD Event – January 25, 2020

MSAD Pizza Party!

 

MSAD in the News

Long Island School Community Supports Moebius Syndrome Student

____________________________________________________

2019 MSAD EVENT PHOTOS

Minnesota Event- February 23, 2019

(Photos coming soon!)

 

San Angelo, Texas- 5k Walk/Run for “Kara Smiles” –January 19, 2019  https://www.saafound.org/karasmiles

 

Northern California Event- January 20, 2019

 

Arizona Event- January 26, 2019

 

New York City, NY Event – January 26, 2019

Houston, Texas Event – January 26, 2019

How Do You Express Yourself? OSU #MoebiusAwareness Project

How do you express yourself? There are so many unique ways to express your true self to others, and individuals with Moebius Syndrome find ways beyond the face to do so. Research in OSU’s Disability and Social Interaction Lab shows that education about Moebius syndrome and other types of facial paralysis creates more positive impressions.

Help us raise awareness: take a photo of yourself with a sign answering the question, “how you express yourself?” Use our template, or write your own. Post it on the Moebius Syndrome Foundation Facebook page. Challenge two of your friends to do the same by tagging them. Read more about OSU’s awareness project: http://liberalarts.oregonstate.edu/sps/dsil/moebius-syndrome-awareness-project

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MSAD Videos

Meet Josiah and Hannah!

 

 

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