When: January 24
What: Moebius Syndrome Awareness Day is an annual event celebrated globally each year on January 24th — the birth date of Professor Paul Julius Moebius, the doctor who first diagnosed the condition in 1888.
In 2011, Moebius Syndrome Awareness Day was started by the Many Faces of Moebius Syndrome and has been embraced globally by other organizations that support efforts to raise awareness. The Moebius Syndrome Foundation celebrates #MSAD by sharing information about Moebius syndrome, offering financial support and resources to approved events, encouraging people to wear purple, and raising awareness through various means and channels.
Tools For Hosting An Event
PASS ALONG CARDS: These cards can be saved to your computer, and then uploaded to a website that prints business cards (Vista Print is one example) to be printed and shipped to your home. There are ideally sized to carry in your wallet and have ready to pass out when you meet someone that wants to know more about Moebius syndrome. If you’d like a card personalized with your child’s photo, please contact us.
2022 Awareness Events
Theme: Moebius Syndrome Awareness Every Day
In 2022, the Moebius Syndrome Foundation is focusing on raising awareness about Moebius syndrome every day! If you are planning an event or would like ideas on ways you can raise awareness this year, please contact us.
The Moebius Syndrome Foundation helps to financially support approved awareness events, in addition to sending promotional and informational materials and helping to publicize your event. Whether it be an event at your home, a park, restaurant, or another public venue, handing out information at school or workplaces, or other types of awareness events, we are here to support you. Please contact us for more information.
Updated January 13, 2022: Considering the rapid spreading and highly contagious Omnicron variant of Covid-19, the Moebius Syndrome Foundation strongly encourages our members to consider not meeting in person for awareness events during the month of January. If you do decide to gather in a group setting, we ask that you please consider all state and local health mandates and safety precautions. Furthermore, we would like to remind our members that awareness campaigns and celebration events can be held at any time of the year- not just January- and to consider postponing in-person gatherings until the health climate improves.
Moebius Syndrome Awareness Facebook Live Video, January 9, 2022
Panelists: Phyllida Swift from Face Equality International, Andrea Smith from Many Faces of Moebius Syndrome, Dina Zuckerburg from myFace, Jennifer Garvey, Paula Santana, KiOwana Phillips; Moderated by Kelsey Ferrill from Moebius Syndrome Foundation
Chicago, Illinois (During the Entire Month of January!)
2021 AWARENESS EVENTS
In 2021, because of health & safety concerns, the Moebius Syndrome Foundation does not encourage any in-person Awareness Day events in the month of January. However, there are many other ways that we can spread awareness about Moebius syndrome, and celebrate our differences together.
What I Want the World to Know About Moebius Syndrome
In 2021, the Moebius Syndrome Foundation’s theme for the month of January is “What I Want the World to Know About Moebius Syndrome.” We rallied the Moebius community and asked them to share their stories, and this is what they had to say in their own words. Please check out the following videos and infographics that we’ve also shared on our social media pages.
2020 MSAD EVENTS
Houston, Texas Event- January 18, 2020
Arizona MSAD Event – January 25, 2020
Colorado MSAD Event – January 25, 2020
Group picture taken in Castle Rock, CO. Event hosted by The Many Faces of Moebius Syndrome.
New York City MSAD Event – January 25, 2020
2nd Annual MSAD Event
San Angelo, Texas MSAD Event – January 25, 2020
Moebius Fun Run / Walk – benefitting Kara Smiles Fund
For information and to register, please visit the official website.
Lafayette, California MSAD Event – January 25, 2020
MSAD Pizza Party!
MSAD in the News
2019 MSAD EVENT PHOTOS
Minnesota Event- February 23, 2019
(Photos coming soon!)
San Angelo, Texas- 5k Walk/Run for “Kara Smiles” –January 19, 2019 https://www.saafound.org/karasmiles
Northern California Event- January 20, 2019
Arizona Event- January 26, 2019
New York City, NY Event – January 26, 2019
Houston, Texas Event – January 26, 2019
How Do You Express Yourself? OSU #MoebiusAwareness Project
How do you express yourself? There are so many unique ways to express your true self to others, and individuals with Moebius Syndrome find ways beyond the face to do so. Research in OSU’s Disability and Social Interaction Lab shows that education about Moebius syndrome and other types of facial paralysis creates more positive impressions.
Help us raise awareness: take a photo of yourself with a sign answering the question, “how you express yourself?” Use our template, or write your own. Post it on the Moebius Syndrome Foundation Facebook page. Challenge two of your friends to do the same by tagging them. Read more about OSU’s awareness project: http://liberalarts.oregonstate.edu/sps/dsil/moebius-syndrome-awareness-project