2022 Moebius Syndrome Foundation Conference

July 14-17, 2022 • Atlanta Airport Marriott — Atlanta, Georgia

Conference Slideshow

Conference Photos 

View photos taken by Rick Guidotti with Positive Exposure

*Photos are free to download, or prints are available for purchase.

There was a fun photo booth at the 2022 conference! Attendees can now download their photobooth pictures for free, or purchase a print here.

View the Moebius Syndrome Foundation’s Flickr account to see conference photos submitted by attendees.

View the Conference Program

Select presentations are now available to view:

• Scientific Advisory Board Q&A Panel, presented by Moebius Syndrome Foundation Scientific Advisory Board Members Watch Here
• Genetic Research into Moebius Syndrome, presented by Elizabeth Engle, M.D., Ethilyn Jabs, M.D., Irini Manoli, M.D., Bryn Webb, M.D. Watch Here
• Back to School IEP/504 Tips and Resources, presented by Destiny Bachman and Leah Richter Maldonado Watch Here
• We are Limitless, keynote presentation presented by David Garcia, Ph.D. Watch Here
• What I Wish My Parents Had Known: Young Adults with Moebius Talk to Parents of Children with Moebius, presented by Jessica Maher, Austin Halls, and Alli Johnson  Watch Here
• Where to Go and What to Do When You Have Mental Health Concerns, presented by Kathleen Bogart, Ph.D. View Here
• Standing Up for Yourself: Confidence in Teens & Young Adults, presented by Tara Lewis, Ph.D. View Here
• Finding Your Passion and Purpose: Key Strategies to Rocking Your Life & Career, presented by Zoe Cross View Here
• Dental Concerns for People with Moebius, presented by Greg Osborne, D.D.S. View Here
• Caitlyn’s Oral Hygiene Care Video, presented by Greg Osborne, D.D.S. View Here
• Surviving the First Year, presented by Katherine Lockwood View Here
• Disability Won’t Stop Your Ability to Perform, presented by Madhuri Gunti View Here
• Overcoming Stress and Achieving Relaxation Through Music and Meditation, presented by Jon Fisher View Here
• Introduction to Sleep Disorders and Treatments, presented by Greg Osborne, D.D.S. View Here
• Where You Are: How to Identify Your Major and Career Options, presented by Tara Lewis, Ph.D. View Here
• Psychological Wellbeing of Patients, presented by Kathleen Bogart, Ph.D. View Here
• Caregiver Burnout and Distress, presented by Rhonda Robert, Ph.D., and Diana Guzman, LPC  View Here
• Coping Skills for Everyday Life for Teens and Adults, presented by Rhonda Robert, Ph.D.  View Here
• Speech and Feeding Issues, presented by Renee Roy-Hill, MS, CCP-SLP  View Here
• Neuromuscular Retraining for Facial Paralysis, presented by Jackie Diels, OT  View Here

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2020 Virtual Moebius Syndrome Foundation Conference

14th Moebius Syndrome Foundation Conference

• Fitness for All, presented by KiOwana E. Phillips Watch Here
• Adaptive Technology, presented by Alex Barker Watch Here
• Moebius Syndrome Research updates, presented by Drs. Engle, Jabs, Manoli, and Webb Watch Here
•  Just for Moms of Moebius Children Chat, moderated by Sharon Deveney (private session)
• Happy Hour / Bingo, moderated by Kelsey Ferrill and Jenny Whitman Watch Here
• Scientific Advisory Board Q&A session, moderated by Vicki McCarrell Watch Here
• Just for Dads  of Moebius Children Chat, moderated by Will Harrison (private session)
• Just for Parents of Medically Complex Children Chat, moderated by Nicole Zeitler, Moebius Syndrome Foundation Board Member (private session)
•  Your Personal Image, presented by Susana Romero Watch Here
•  A Bright Future: Looking Beyond Moebius Syndrome, by Austin Halls, Jessica Maher, Kevin Smant, PhD, Emoni Williams Watch Here
• Coping Strategies to get through difficult times, presented by Dr. Leah Stock-Landis, PhD   Watch Here
• Just for Women with Moebius chat, moderated by Dr. Kathleen Bogart, Moebius Syndrome Foundation Scientific Advisory Member (private session)
• Moebius Syndrome Frame Film Watch Here
• Just for Men with Moebius chat, moderated by Steven Maldonado, Moebius Syndrome Foundation Board Member (private session)
•  Just for Canadians chat session, moderated by Kelsey Ferrill, Moebius Syndrome Foundation Board Member (private session)
• Art Journaling: A Creative Writing Session, presented by Lisa Smant Watch Here
• Just for Teens with Moebius Chat session, moderated by Austin Halls (private session)
• Well Being of Parents Within the Moebius Community, presented by Will Harrison Watch Here
• Talent Show with performances by children, teens, and adults with Moebius syndrome Watch Here

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2019 Mini-Conferences

In 2019, the Moebius Syndrome Foundation hosted two Mini-Conferences in Portland, OR and Ft. Worth, Texas. View here.

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13^th Moebius Syndrome Foundation Conference

July 20-22, 2018 • Vinoy St Petersburg — St Petersburg, Florida

Conference Slideshow

13th Moebius Syndrome Foundation Conference Closing Slideshow from Moebius Syndrome Foundation on Vimeo.

Conference Photo Galleries: Facebook | Flickr

Positive Exposure Photos (password: Amazing)  Photos for View or Purchase

Conference Agenda

Selected Presentations