- Who We Are
- About Moebius Syndrome
- Living With Moebius Syndrome
- Science & Healthcare
- Events
The Moebius Syndrome Foundation has two leadership groups: the Board of Directors and the Scientific Advisory Board. The Foundation also employs a small staff.
Jenny Whitman is Executive Director and Rebecca Maher is President of the Board of Directors.
For more information on the Scientific Advisory board, please click here.
Jenny Whitman serves as the main point of contact for the Moebius Syndrome Foundation.
You can reach her by phone at +1 (844) MOEBIUS x.703 or by email: Jenny@moebiussyndrome.org
The Board of Directors helps the MSF fulfill its mission by providing governance, ensuring financial sustainability, and supporting our community members through direct outreach.
The Moebius Syndrome Foundation has a small staff of employees and independent contractors who assist with event planning, content creation, social media, and administrative needs.
