When you give a planned gift to The Moebius Syndrome Foundation, you’ll become a member of the Moebius Syndrome Foundation Legacy Society.
Please let us know if you have already included MSF in your legacy planning! We want to celebrate you!
Thank you to these donors who are ensuring that the work of the Moebius Syndrome Foundation continues today and always.
In 1990 there were no resources available for parents of children with Moebius syndrome. When Vicki and Lori Thomas discovered that they lived 4 miles apart in Los Angeles, the Moebius Syndrome Foundation was born.
Vicki is most passionate about support for new parents and research into the cause of Moebius syndrome. She has included the MSF in her estate planning to ensure all parents will have access to information and support.
One day in the mail I received an article from a local newspaper in a Los Angeles suburb that my aunt sent me; it was an article about a new support group a few miles away from her, surprisingly for people with Moebius syndrome. This was in the early 1990s before the Moebius Syndrome Foundation was formed. We connected with the small group of parents, children, and adults, and joined them at get-togethers in the Los Angeles area and have been involved in the Foundation since then.
My aunt, Loretta, had always supported the Moebius Syndrome Foundation with annual donations. She looked forward to reading the newsletters and the conference programs, and often wore MSF conference t-shirts to her line dancing and tai chi classes. My aunt included the Foundation in her estate plans, and her legacy gift to the Foundation was received in the spring. It has been earmarked for research to further the understanding cause of Moebius syndrome, definitely the definition of a generous legacy gift.
— submitted by Marcia Abbott, MSF Board Emeritus