Moebius Syndrome Foundation

Health Care Service Providers Listings

Individuals with Moebius syndrome and their families have created the following list of healthcare providers. This list is purely informational and not an endorsement on behalf of the Moebius Syndrome Foundation.

If you know a healthcare provider familiar with Moebius syndrome whom you would personally recommend, please share their information. We are looking for patient-referred doctors, therapists, dentists, surgeons, mental health professionals, etc. from around the world.

Listing of healthcare service providers

Ophthalmology

Boston Children’s Hospital, Department of Ophthalmology
300 Longwood Avenue, Fegan, 4th Floor
Boston, Massachusetts 02115

Contact: 617-355-6401

David Hunter, M.D., Ph.D.

Mary Whitman, M.D., Ph.D.

Eric Gaier, M.D., Ph.D.

Gena Heidary, M.D., Ph.D.

Smile or Hand Surgery

The Center for Advanced Facial Plastic Surgery
Beverly Hills, CA
Dr. Babak Azizzadeh, M.D., FACS

Patrick Byrne, M.D., MBA
Cleveland Clinic

Dr. Andre Panossian, M.D., FACS
Beverly Hills, CA

The Facial Nerve Institute
St. Louis Children’s Hospital and Washington University
St. Louis, MO
Dr. Alison Snyder-Warwick, M.D.

Riley Hospital for Children
Indiana University Health
Indianapolis, IN
Dr. Gregory Borschel, M.D.

Johns Hopkins Medicine
Plastic and Reconstructive Surgery and Pediatrics
Dr. Richard Reddett, M.D.

 

Massachusetts Eye and Ear
Boston, MA
Dr. Theresa A. Hadlock, M.D.

Pediatric Pulmonologists

Children’s National Health System
Washington DC
Hollis Chaney, M.D.

Pediatric Dentists

The Children’s Hospital of Philadelphia
Philadelphia and various locations, PA
Sheldon Bernick, DDS, DMD

Woodinville Pediatric Dentistry
Woodinville, WA
Rama Oskouian, DDS, DMD

 

Dentists

Oakwell Dental Care
San Antonio, TX
Gregory A. Osborne, DDS, FADI

Occupational Therapists

Physical Therapists

Massery Physical Therapy
Glenview, IL
Mary Massery, PT, DPT, DSc

Craniofacial Care Teams

Children born with cleft lip, cleft palate and/or other craniofacial differences may require individualized treatment into adulthood. Their care is best managed when a team of specialists works with the family to develop and follow a treatment plan. ACPA is dedicated to team care and to optimizing outcomes for patients.

The American Cleft Palate Craniofacial Association (ACPA) approves teams that meet the Standards for Approval of Cleft Palate and Craniofacial Teams, based on the Parameters of Care. ACPA Approved Teams are listed on the website and are available for the general public to reference when choosing a provider for cleft and craniofacial healthcare needs.

ACPA only approves teams in the U.S. and Canada. The website also lists teams from around the world as a resource for patients and families.

Find a care team in your area.